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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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lucinda bateman

  1. Pyrrhus

    ME/CFS Crash Survival Guide (from Bateman Horne Center)

    ME/CFS Crash Survival Guide (from Bateman Horne Center) The Bateman Horne Center has put together an easy-to-use guide to prepare for crashes in advance: https://batemanhornecenter.org/education/mecfs-guidebook/ They also provide helpful supplies to accompany a crash: Diagnosis Cheat...
  2. GlassCannonLife

    Metabolomic Evidence for Peroxisomal Dysfunction and Dysregulation of the CDP-Choline Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    Just saw this article posted up on the ME/CFS News twitter. Link is here. Abstract: Emphasis above is my own. It made me think of a relatively recent (6-8 months ago..?) discussion I saw regarding plasmalogens. I made preliminary notes on them but didn't search further - perhaps this is...
  3. SWAlexander

    Multi-omics of host-microbiome interactions in short- and long-term Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

    Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multi-system, debilitating disability manifesting as severe fatigue and post-exertional malaise. The chronic dysfunctions in ME/CFS are increasingly recognized as significant health factors with potential...
  4. Pyrrhus

    Dysregulation of the Kennedy Pathway and Tricarboxylic Acid Cycle in ME/CFS (Che et al., 2021) (Pre-print)

    Dysregulation of the Kennedy Pathway and Tricarboxylic Acid Cycle in ME/CFS (Che et al., 2021) (Pre-print) Authors: Xiaoyu Che, Christopher R. Brydges, Yuanzhi Yu, Adam Price, Shreyas Joshi, Ayan Roy, Bohyun Lee, Dinesh K. Barupal, Aaron Cheng, Dana March Palmer, Susan Levine, Daniel L...
  5. ljimbo423

    Will COVID-19 Lead to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

    I couldn't find this posted anywhere else. Notice the authors, both ME/CFS researchers and clinicians. Will COVID-19 Lead to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? Anthony L. Komaroff1* and Lucinda Bateman2 for the U.S. ME/CFS Clinician Coalition These are just a couple of...
  6. wabi-sabi

    New documentary about Dr. Bateman

    I just saw this on Dr. Bateman's twitter this morning. Someone's made what looks to be a wonderful documentary about Dr. Bateman and her work for us. It's also available for crowdfunding, so take a look!
  7. B

    Meet The Scientist: Interview with Dr. Lucinda Bateman

    Introduction: I have been interviewing ME researchers for the latest 18 months and publishing the interviews in the newsletter of my local support group. A few have appeared on the ME Action website. Please find below my latest interview. Dr. Bateman has treated over a thousand patients with...
  8. Kati

    Dr Bateman's presentation on bringing doctors up to speed on ME and FM

    This 1 hour presentation provides a lot of insight about why the field of ME and FM is so neglected and why doctors do not learn about these diseases in med school. Well worth of your time. There may be one or 2 topics I disagree with (or do not have sufficient information to agree with her)...
  9. S

    Bateman Horne Center: Suzanne Vernon and Dr Lucinda Bateman form an ME/CFS/FM Center of Excellence in Utah

    Cort's article about it here. Here's the Bateman Horne Center site. Weirdly, I couldn't tell where in the US it's located!