Bateman Horne Center: Suzanne Vernon and Dr Lucinda Bateman form an ME/CFS/FM Center of Excellence in Utah
- Thread starter Sasha
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Salt Lake City, Utah, where Dr. Bateman has practiced for years, and where OFFER was started.
I will mention that to the BHC CEO. He very kindly stops to say hello when I show up for the education meetings.
The site is completely new and still under construction. I am just happy it is up and running! Edit. Yes... the address actually says Testville! Give them time.
Videos of the OFFER education meetings should still be available. They are always excellent.
I will mention that to the BHC CEO. He very kindly stops to say hello when I show up for the education meetings.
The site is completely new and still under construction. I am just happy it is up and running! Edit. Yes... the address actually says Testville! Give them time.
Videos of the OFFER education meetings should still be available. They are always excellent.
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With the likes of Suzanne Vernon on our side, who needs enemies? I mean really, Cort touting her work with William Reeves? Sounds like a new western branch for CDC public relations to me. For me, that finally ends my internal "friend or foe" debate regarding Bateman.
All you need to do to assess Suzanne Vernon's work is examine the studies she produced while at the Solve ME/CFS Initiative, the researchers she introduced to this illness and the work she did at the CDC.
If you do that - which I guess from the tenor of you are probably not willing to do - but if you do, you'll see a researcher committed to uncovering the pathophysiological underpinnings of this illness - which I assume is something you want.
If you do that - which I guess from the tenor of you are probably not willing to do - but if you do, you'll see a researcher committed to uncovering the pathophysiological underpinnings of this illness - which I assume is something you want.
You're serious? William Reeves, Suzanne Vernon, and Elizabeth Unger? Do you feel the same about Steven Strauss? I'll stick with the idea that with friends like these we need no enemies.
I'm afraid I've looked and seen all I care to of Suzanne Vernon's "work". I see nothing but the usual CDC nonsense, though she seems to have profited from it handsomely while at Kim Mccleary's CFIDS Association. I do have high hopes, with both Vernon and McCleary gone, maybe the new people running the organization previously known as the CFIDS Association will be able to make its new name something something I can respect.
I'm afraid I've looked and seen all I care to of Suzanne Vernon's "work". I see nothing but the usual CDC nonsense, though she seems to have profited from it handsomely while at Kim Mccleary's CFIDS Association. I do have high hopes, with both Vernon and McCleary gone, maybe the new people running the organization previously known as the CFIDS Association will be able to make its new name something something I can respect.
In case anybody wanted a link, Suzanne Vernon's related PubMed research can be found here.
Studies in the past 2 years:
Some of these are free full text. I have probably not read them, as my ability to read full articles had dropped sharply a good while back.
Studies in the past 2 years:
Some of these are free full text. I have probably not read them, as my ability to read full articles had dropped sharply a good while back.
I sometimes think I'm living in a parallel universe. I think that the Solve ME/CFS Initiative is doing amazing work these days. What am I missing?
As I said, with Vernon and McCleary gone I have hope that that will continue. I was really impressed with how they handled IOM report .
I was as happy to hear that Vernon was leaving as I was that Wessely would no longer work on CFS...sadly, both things were only temporary.
I was as happy to hear that Vernon was leaving as I was that Wessely would no longer work on CFS...sadly, both things were only temporary.
I have great respect for Suzanne Vernon too, I think claims that she is a CDC shill or whatever are nonsense.
I'm completely serious. By that I mean I've looked at her work and the work of the Solve ME/CFS Association and I've concluded that it;s really good. My question is whether you are "serious"; i.e. have you actually looked at their work - the studies they're funding and researchers they're interacting - based your assessment on that or what?
Related discussions:
Dr Bateman's presentation on bringing doctors up to speed on ME and FM (2017)
https://forums.phoenixrising.me/thr...nging-doctors-up-to-speed-on-me-and-fm.53455/
Meet The Scientist: Interview with Dr. Lucinda Bateman (2020)
https://forums.phoenixrising.me/threads/meet-the-scientist-interview-with-dr-lucinda-bateman.79392/
New documentary about Dr. Bateman (2020)
https://forums.phoenixrising.me/threads/new-documentary-about-dr-bateman.81386/
ME/CFS Crash Survival Guide (from Bateman Horne Center) (2022)
https://forums.phoenixrising.me/threads/me-cfs-crash-survival-guide-from-bateman-horne-center.86965/
Dr Bateman's presentation on bringing doctors up to speed on ME and FM (2017)
https://forums.phoenixrising.me/thr...nging-doctors-up-to-speed-on-me-and-fm.53455/
Meet The Scientist: Interview with Dr. Lucinda Bateman (2020)
https://forums.phoenixrising.me/threads/meet-the-scientist-interview-with-dr-lucinda-bateman.79392/
New documentary about Dr. Bateman (2020)
https://forums.phoenixrising.me/threads/new-documentary-about-dr-bateman.81386/
ME/CFS Crash Survival Guide (from Bateman Horne Center) (2022)
https://forums.phoenixrising.me/threads/me-cfs-crash-survival-guide-from-bateman-horne-center.86965/
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Fingers crossed! 😭
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Any ideas on the dose level for these combos of
#1 Phase 2 trial for Fibro targeting HSV1 (IMC-1 Famciclovir & celecoxib )
#2 Trial for Long covid targeting EBV reactivation (IMC-2 valacyclovir & celecoxib ).
The Virios patent has a wide range of dosing, https://patents.google.com/patent/US10251853B2/en
And the fibro trial doesn't mention dose amount, https://clinicaltrials.gov/ct2/show/NCT04748705
#1 Phase 2 trial for Fibro targeting HSV1 (IMC-1 Famciclovir & celecoxib )
#2 Trial for Long covid targeting EBV reactivation (IMC-2 valacyclovir & celecoxib ).
The Virios patent has a wide range of dosing, https://patents.google.com/patent/US10251853B2/en
And the fibro trial doesn't mention dose amount, https://clinicaltrials.gov/ct2/show/NCT04748705
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Mar. 2022 Clinical trial - Famciclovir in Multiple Sclerosis. Target is to see if EBV shedding in saliva goes down. This trial isn't looking for clinical changes, just viral shedding.
https://clinicaltrials.gov/ct2/show/NCT05283551
https://clinicaltrials.gov/ct2/show/NCT05283551
@Redtruck99
The company responsible for the med in the fibro trial is Virios. I found this on their website:
https://ir.virios.com/news/press-re...-therapeutics-study-featured-in-peer-reviewed
It mentions a medication called IMC-1.
"MC-1 is a fixed dose combination drug with proprietary doses of famciclovir, an anti-viral nucleoside analog, which prevents viral replication, and the anti-inflammatory compound celecoxib , which also processes unique anti-viral activity.
A Phase 2 clinical trial testing IMC-1 has been completed successfully (NCT01850420, known as PRID-201). In this randomized, double-blinded, placebo-controlled, proof-of-concept study, the drug was evaluated for its efficacy and safety. A total of 143 female participants with FM, from different sites across the U.S., received either IMC-1 or a placebo. Researchers measured the participants’ pain scores over a 16-week treatment period using two questionnaires: The Patient Global Impression of Change (PGIC), and the revised disease-specific Fibromyalgia Impact Questionnaire (FIQ-R).
Results, first announced at the 2014 American College of Rheumatology annual meeting and published in the Journal of Pain Research, showed that after the 16-week treatment period, patients taking ICM-1 had a decrease in fibromyalgia-associated pain, and improved scores on the two questionnaires. There also was a decrease in patients’ self-reported fatigue levels. The drug was well-tolerated and safe."
From: https://fibromyalgianewstoday.com/imc-1/
Unfortunately, I haven't found any dosage info. But I'm going to keep looking because I would like to try this!
The company responsible for the med in the fibro trial is Virios. I found this on their website:
https://ir.virios.com/news/press-re...-therapeutics-study-featured-in-peer-reviewed
It mentions a medication called IMC-1.
"MC-1 is a fixed dose combination drug with proprietary doses of famciclovir, an anti-viral nucleoside analog, which prevents viral replication, and the anti-inflammatory compound celecoxib , which also processes unique anti-viral activity.
A Phase 2 clinical trial testing IMC-1 has been completed successfully (NCT01850420, known as PRID-201). In this randomized, double-blinded, placebo-controlled, proof-of-concept study, the drug was evaluated for its efficacy and safety. A total of 143 female participants with FM, from different sites across the U.S., received either IMC-1 or a placebo. Researchers measured the participants’ pain scores over a 16-week treatment period using two questionnaires: The Patient Global Impression of Change (PGIC), and the revised disease-specific Fibromyalgia Impact Questionnaire (FIQ-R).
Results, first announced at the 2014 American College of Rheumatology annual meeting and published in the Journal of Pain Research, showed that after the 16-week treatment period, patients taking ICM-1 had a decrease in fibromyalgia-associated pain, and improved scores on the two questionnaires. There also was a decrease in patients’ self-reported fatigue levels. The drug was well-tolerated and safe."
From: https://fibromyalgianewstoday.com/imc-1/
Unfortunately, I haven't found any dosage info. But I'm going to keep looking because I would like to try this!