ME/CFS Crash Survival Guide (from Bateman Horne Center)
The Bateman Horne Center has put together an easy-to-use guide to prepare for crashes in advance:
https://batemanhornecenter.org/education/mecfs-guidebook/
They also provide helpful supplies to accompany a crash:
Diagnosis Cheat...
Just saw this article posted up on the ME/CFS News twitter.
Link is here.
Abstract:
Emphasis above is my own. It made me think of a relatively recent (6-8 months ago..?) discussion I saw regarding plasmalogens. I made preliminary notes on them but didn't search further - perhaps this is...
anthony komaroff
dan peterson
https://forums.phoenixrising.me/attachments/1626042816369-png.43871/
ian lipkin
jose montoya
lucindabateman
mady hornig
metabolomics
peroxisome
plasmalogen
ppi-1040
susan levine
suzanne vernon
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multi-system, debilitating disability manifesting as severe fatigue and post-exertional malaise. The chronic dysfunctions in ME/CFS are increasingly recognized as significant health factors with potential...
Dysregulation of the Kennedy Pathway and Tricarboxylic Acid Cycle in ME/CFS (Che et al., 2021) (Pre-print)
Authors: Xiaoyu Che, Christopher R. Brydges, Yuanzhi Yu, Adam Price, Shreyas Joshi, Ayan Roy, Bohyun Lee, Dinesh K. Barupal, Aaron Cheng, Dana March Palmer, Susan Levine, Daniel L...
anthony komaroff
dan peterson
https://forums.phoenixrising.me/attachments/1626042816369-png.43871/
ian lipkin
jose montoya
lucindabateman
mady hornig
metabolomics
susan levine
suzanne vernon
I couldn't find this posted anywhere else. Notice the authors, both ME/CFS researchers and clinicians.
Will COVID-19 Lead to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?
Anthony L. Komaroff1* and Lucinda Bateman2 for the U.S. ME/CFS Clinician Coalition
These are just a couple of...
I just saw this on Dr. Bateman's twitter this morning. Someone's made what looks to be a wonderful documentary about Dr. Bateman and her work for us. It's also available for crowdfunding, so take a look!
Introduction: I have been interviewing ME researchers for the latest 18 months and publishing the interviews in the newsletter of my local support group. A few have appeared on the ME Action website. Please find below my latest interview.
Dr. Bateman has treated over a thousand patients with...
This 1 hour presentation provides a lot of insight about why the field of ME and FM is so neglected and why doctors do not learn about these diseases in med school. Well worth of your time.
There may be one or 2 topics I disagree with (or do not have sufficient information to agree with her)...