• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. RyeRyeBread

    Anyone else get extremely sleepy/can't stay awake when sick?

    This never happened to me prior to becoming chronically ill. For reference - I have suspected ME and diagnosed POTS, thus far. Since becoming ill, I've only gotten "muggle" sick about 3-4 times (only been chronically ill for 2 years come june). First time was possibly just allergies and it...
  2. SWAlexander

    New study links 14 genes to ME/CFS

    A study has analysed existing genetic data in a new way to link 14 genes to ME/CFS and identify many patient subgroups. If the new approach pans out, it could transform ME research and turbocharge the development of treatments. Paper: Genetic Risk Factors for ME/CFS Identified Using...
  3. acouchy

    Human papillomavirus infection?

    I have read that ME might be caused by many viruses but don't see much about the human papillomavirus (HPV). Have any studies been done on HPV and ME? I am curious because 1-2 yrs before I became ill with ME I developed a very severe case of plantar warts on my feet from an exposure at a...
  4. MarkRichardson

    Negative IgM means no active infection?

    I’m a bit confused. Does having a negative IgM on a blood test for a virus usually rule out an active viral infection? For instance on my EBV blood test I have positive IgG, negative IgM and positive Lytic antigens (T-Cells). I’ve spoken to four different doctors about this, three of them...
  5. frozenborderline

    Swelling and itching help, possible infections??

    Below is what I posted in r/askdocs I think it's a good summary of my situation and too tjred to repeat myself much. The things I wonder most about are valley fever and chagas disease ... seems more likely to be fungal or parasitic than bacterial and more likely to be some infection than an...
  6. Fuluf

    Chronic infection that you might have never heard about: "ropeworm"

    Hello everyone. After being in hell for about 3 years now, I accidentally found the probable root cause of all my problems. To put it briefly, during this 3 years I've had lots of weird symptoms which were severe in its intensity: -cognitive impairnment/brain fog/confusion -exercise intolerance...
  7. C

    Clarification on E. Coli

    Hi there, Can any of you folks help me with some insights? GI map stool test came back with high levels of pathogenic Enterotoxigenic E. coli LT/ST. The part I'm confused on is that it sounds like it's common/normal for E. Coli to inhabit the large intestine. Is there good e. coli and bad e...