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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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diagnostics

  1. gauche

    Diagnostic for reduced calcium in cells

    Hey folks, As we know, there's a lot of chatter about links between ME/CFS and long COVID. However, today I was surprised to read that a research team in QLD are looking into whether their ME/CFS diagnostic test (yes, diagnostic test) and treatment (double yes) will also work for long COVID...
  2. Thehealthofholly

    Labs for Epstein-Barr Virus (EBV)

    I’m going to get my labs done again (I have a PCP who will run anything, but does not have specialized knowledge of CFS). Am I missing anything for labs? Should I request anything more specific for EBV? I am 90 percent sure I had a reactivation of Mono this week. Fever, swollen glands, massive...
  3. Pyrrhus

    Saliva fatigue biomarker index as a marker for severe ME/CFS in a community based sample (Jason et al., 2021)

    Saliva fatigue biomarker index as a marker for severe ME/CFS in a community based sample (Jason et al., 2021) https://doi.org/10.1080/21641846.2021.1994222 Excerpt:
  4. Pyrrhus

    Induced pluripotent stem cells as suitable sensors for fibromyalgia and ME/CFS (Monzón-Nomdedeu et al., 2021)

    Induced pluripotent stem cells as suitable sensors for fibromyalgia and ME/CFS (Monzón-Nomdedeu et al., 2021) https://www.wjgnet.com/1948-0210/full/v13/i8/1134.htm Monzón-Nomdedeu MB, Morten KJ, Oltra E. A literature review of metabolomics studies from Karl Morten and Elisa Oltra on...
  5. Pyrrhus

    Hand grip strength and fatigability: correlation with clinical parameters and diagnostic suitability in ME/CFS (Jäkel et al., 2021)

    Hand grip strength and fatigability: correlation with clinical parameters and diagnostic suitability in ME/CFS (Jäkel et al., 2021) by Bianka Jäkel, Claudia Kedor, Patricia Grabowski, Kirsten Wittke, Silvia Thiel, Nadja Scherbakov, Wolfram Doehner, Carmen Scheibenbogen & Helma Freitag...
  6. Pyrrhus

    Micro-RNA's in ME

    Since 2020 brought us four new publications on micro-RNA's (miRNA), I thought I'd start a thread to collect together the various discussions on micro-RNA's. Hopefully this will aid in the comparison of studies. Please feel free to add more studies or discussions as needed. The basics of...
  7. Pyrrhus

    Are Circulating Fibroblast Growth Factor 21 & N-Terminal Prohormone of Brain Natriuretic Peptide Promising Biomarkers in ME/CFS? (Domingo et al, 2021)

    A new paper looking at blood markers of oxidative stress and inflammation in ME: Are Circulating Fibroblast Growth Factor 21 and N-Terminal Prohormone of Brain Natriuretic Peptide Promising Novel Biomarkers in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? (Domingo et al., 2021)...
  8. Diwi9

    Assessing diagnostic value of microRNAs from peripheral blood mononuclear cells and extracellular vesicles in ME/CFS (Almenar-Perez et al. 2020)

    Assessing diagnostic value of microRNAs from peripheral blood mononuclear cells and extracellular vesicles in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Eloy Almenar-Pérez, Leonor Sarría, Lubov Nathanson & Elisa Oltra Scientific Reports volume 10, Article number: 2064 (2020)...
  9. K

    Dr. Kaufman lab test fees?

    Hello! I'm seriously considering seeing Dr. Kaufman at the Center for Complex Diseases in California, and I'm wondering how much people have spent on lab work and tests who have seen him previously? I'm still working on wrapping my mind around the $2,000 for the initial two appointments, the...
  10. nanonug

    Circulating extracellular vesicles as potential biomarkers in CFS/ME: an exploratory pilot study

    COMMENT: Wondering if these extracellular vesicles are that "something" that Ron Davis mentioned is different is the blood of people with SEID. Although the sample was small, the level of significance was pretty darn good. https://www.tandfonline.com/doi/full/10.1080/20013078.2018.1453730...
  11. Z

    Most accurate lyme test

    Could we have a discussion regarding which test is the most accurate test for lyme disease and coinfections? Please share opinions and experiences