crash

I recently started having pretty big MCAS symptoms. I never knew about MCAS and now realise I have been having some MCAS symptoms most of my life, but way way less. Now it got pretty extreme and hard to handle, is it worse in a crash for you guys? I think I might also crashed. Also it seems...

Hello everyone, what are your experiences with metamizol (novalgin)? Yesterday, my GP has prescribed me Novaminsulfon (500 mg metamizol sodium monohydrate), and I am trying to decide whether to take it. I am really scared of trying out a new med. I'm severe (2) and fear the next big crash...

I am wondering how PEM frequency relates to severity level.

I was wondering how often you guys experience PEM, since I have seen quite varying reports on here. It would be interestign to see if/how PEM % correlates with severity level, but I dont know how to incorporate this in a single poll.

My partner is very severe after a crash/rapid decline nearly two months ago. They have only been able to eat through a straw since then as chewing and feeding themself is too exerting. At the start I asked our GP for a referral to a nutritionist/dietician, but she said it was fine as long as...

I’m trying to determine whether i’m in a crash or if it’s something else. I had to travel in early July and that caused me to crash badly. I paced myself but instead of getting better i kept getting PEM from minimal exertion that i normally tolerated even in crashes. I’ve very gradually...

I had a series of stressful events in my life that caused me to crash in early july. ever since then, every time i got PEM, i haven’t recovered from it. My baseline was so unstable it was really hard to gauge what was going to give me PEM. I went from moderate to severe to very severe in 3...

I've been waking up [from naps and general overnight sleeping] feeling like I've crashed in my sleep, and been a little caught off guard because I didn't think I was going to- Anyone else? When I crash/have a PEM episode, I usually have a whole handful of symptoms that occur, as somewhat of a...

I classify my PEM in two main ways - crashes (PEM main "episodes") & flares (the hours/days of recovery/worsening of symptoms and baseline after a PEM crash). Looks like this: I'll do an activity/exert myself >> I crash (for me, usually a few hours after the activity, and lasting for 2-6 hrs...

I'm curious if any of you has the same manifestation of acute crashes as I have. Because in my case, the sequence is relatively consistent among all the incidents. Yesterday, I had another lukewarm bath. These baths happen to change something so that I wake up early and feel ready for the day...

We're trying to justify treatment to insurance, but a standard 2-day exercise test doesn't get at my son's primary functional issues. His key items are the fatigue, anxiety, intractable headache, brain fog, bad sleep ... AND the neurocognitive/emotional crash he has after cognitive/emotional...

I started taking 1mg of methyl cobalamin recently. It really helps me with energy throughout the day but I always seem to have an extreme somewhere between 5-7pm. Is it safe for me to take a second 1mg methyl cobalamin around 5pm to potentially prevent the crash? Is this common? I'm sensitive to...

Never Enough Hours in a Day With ME/CFS by Jody Smith There just aren't enough hours in the day for the person with ME/CFS. At least, it's been like this for me. It's not that I'm so terribly busy. Indeed, I am not. Not like I used to be busy, before illness. The complicating factor and...

The Crash that Follows the Push of ME/CFS and FM Awareness Day by Jody Smith It's been about a month since the ME/CFS community pulled out all the stops for our May 12 International ME/CFS and FM Awareness Day. I think we have a great deal to be proud of, and encouraged by. With each passing...

Why Is it so Hard to Learn New Things With ME/CFS? by Jody Smith On good days, I mostly operate on cruise control, with the occasional moment of brilliance and quite a bit of vegetative regeneration. I can handle most things especially if they are routine and familiar. Bring in something new...

Today is a lost day for me due to crashing - one of my worst. I feel so systemically bad and brain fogged, with depression, all so bad that I’d have to have a twin to feel worse! Apparently this is due to a 3 hour, 50 mile driving round trip for a doctor’s appointment, along with about a mile...

Hi everyone, So there is a lot of discussion on the forum about handling physically demanding tasks, e.g., using a heart rate monitor to ensure one's heart rate is not going above some baseline and breaking the tasks into smaller chunks and resting in between. What I like to ask the members...