• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Pyrrhus

    #MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS

    #MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/
  2. Pyrrhus

    CDC's Evidence Review of ME/CFS Treatments

    So I know we're all trying to ignore the CDC due to, well, 2020- but this is actually urgent. For those unaware, the U.S. Centers for Disease Control (CDC) commissioned a systematic review of the scientific literature surrounding myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)...
  3. Pyrrhus

    CDC has a page for May 12 Awareness Day!

    The CDC has a page for May 12 Awareness Day! ME/CFS International Awareness Day https://www.cdc.gov/me-cfs/resources/awarenessday.html Excerpt:
  4. Pyrrhus

    CDC finally admits: Enterovirus D68 causes paralysis

    After spending decades carefully avoiding the use of the word “cause” in relation to enteroviruses, the CDC has now conceded for the first time that Enterovirus D68 causes paralysis. https://www.cdc.gov/mmwr/volumes/68/wr/mm6815a4.htm?s_cid=mm6815a4_w
  5. H

    Petition: Stop CDC from hiring shoddy contractor for ME treatment guidelines

    #MEAction: Full text: https://www.meaction.net/2018/08/26/stop-cdc-from-hiring-shoddy-contractor-for-me-treatment-guidelines/?mc_cid=20165100b3&mc_eid=926b73a95d Petition: https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc