#MEAction petition to stop the CDC from repeating a terrible mistake. They are attempting to quietly hire The Pacific Northwest Evidence-based Practice Center (EPC), at Oregon Health and Science University, for a sole-source contract to help them develop new federal guidelines for ME/CFS treatment. That may not sound that bad, but there is plenty of reason to be alarmed. This same contractor was hired four years ago to do a similar literature review of the evidence base for ME/CFS treatments, by a CDC sister-agency, the Agency for Healthcare Research and Quality (AHRQ). It did not go well.
In fact, the previous EPC project turned out to be a years-long nightmare for the ME community. Over and over, advocates pointed out problems with the EPC’s work only to be repeatedly brushed off. When the EPC published its report in 2014 it disastrously included recommendations for GET and CBT, and concluded that PACE was a good trial with little bias!
But we have very little time. The CDC is trying to rush through this sole-source contract of EPC with a minimum time for us to respond, we only have until August 31, 2018. That’s FRIDAY! FRIDAY.