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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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advice

  1. Emeline

    A Guide to Mobility Aids for CFS

    TL;DR: If you have CFS, you will benefit from a mobility aid, now. Do not wait until you get worse. Get One Now. If you don’t want to read anything else, then if you’re independent, get a rollator, if you have a carer, get a self-propelled wheelchair. If you want both in one, there’s a...
    • Emeline
    • Thread
    • accessibility advice canes crutches lifestyle mobility aids quality of life rollators walker wheelchairs
    • Replies: 16
    • Forum: Lifestyle Management
  2. RyeRyeBread

    Advice for the *First* Doctor Visit?

    I'm seeing a new doctor, and I'm really hoping he's open to working through differentials and eventually diagnosis. However, I'm terribly scared that he will be everything we don't want in a doctor: unwilling, unbelieving, rude, "GET and CBT", etc. I have been keeping track of symptoms...
  3. Tella

    Advice needed pls

    Hi I used to be severe and now am moderate. I believe recovery is possible but depends on many factors and it’s complex and wish each of u and myself only more improvement each day. I need advice please. Next week I have a 3 day meeting which I have to attend and I have to speak for half a day...
    • Tella
    • Thread
    • advice endurance fatigue heartrate lifestyle pain rest sit talking throat
    • Replies: 11
    • Forum: Lifestyle Management
  4. T

    First HBOTherapy and I feel way worse... should I keep trying it?

    I had my first HBOT today. I came home and slept for 2 hours, a weird light sleep that didn't really feel like sleep, but I couldn't get up and out of it either. Since then I can barely move or function. Going up my stairs is a night mare, like in a really bad crash. Could this just be a...