• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Emeline

    A Guide to Mobility Aids for CFS

    TL;DR: If you have CFS, you will benefit from a mobility aid, now. Do not wait until you get worse. Get One Now. If you don’t want to read anything else, then if you’re independent, get a rollator, if you have a carer, get a self-propelled wheelchair. If you want both in one, there’s a...
  2. RyeRyeBread

    Advice for the *First* Doctor Visit?

    I'm seeing a new doctor, and I'm really hoping he's open to working through differentials and eventually diagnosis. However, I'm terribly scared that he will be everything we don't want in a doctor: unwilling, unbelieving, rude, "GET and CBT", etc. I have been keeping track of symptoms...
  3. Tella

    Advice needed pls

    Hi I used to be severe and now am moderate. I believe recovery is possible but depends on many factors and it’s complex and wish each of u and myself only more improvement each day. I need advice please. Next week I have a 3 day meeting which I have to attend and I have to speak for half a day...
  4. T

    First HBOTherapy and I feel way worse... should I keep trying it?

    I had my first HBOT today. I came home and slept for 2 hours, a weird light sleep that didn't really feel like sleep, but I couldn't get up and out of it either. Since then I can barely move or function. Going up my stairs is a night mare, like in a really bad crash. Could this just be a...