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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I would really love to see you listening to somebody and being a bit more responsible in giving a warning.
You really hit the bullseye with that post.
I've suffered long term consequences, when I was more trusting/naive.
You make colors by scrolling down the arrow next to the big A--above the message screen.How do you make font colors on these posts.
SIMPLIFIED TREATMENT APPROACH FOR LIFTING THE METHYLATION CYCLE BLOCK IN CHRONIC FATIGUE SYNDROME (Revised)
(Extracted from the full treatment program developed by Amy Yasko, Ph.D., N.D. which is used primarily in treating autism [1])
SUPPLEMENTS
1. FolaPro [2]: tablet (200mcg) daily
2. Actifolate [3]: tablet daily
3. General Vitamin Neurological Health Formula [4]: start with tablet and work up dosage as tolerated to 2 tablets daily
4. Phosphatidyl Serine Complex [5]: 1 softgel capsule daily
5. Activated B12 Guard [6]: 1 sublingual lozenge daily
Fredd
I believe that some people are too sick for their bodies to cope with a start up - i believe that I am one of them. I am not denying anything you have said - you may well be right and the fact that some have healed following this procedure would certainly indicate this.
My issue with you is that you are denying that some being too sick could be true and not warning people about the severity of the effects of trying the procedure if indeed they are too sick at that time to cope with it. It is interesting that two others ie dreambirdie and klutzo who are both at a similar level to me have stopped the treatment through listening to what their bodies were telling them and not listening to you say that everything was fine when it obviously was not.
I think that an endo system can be too knackered to cope and what is needed first is some basic healing so that the body can be brought up to the point where perhaps your protocol can be tried out again. I am certainly willing to try it again one day.
I get the impression that perhaps you are thinking that we have 'chickened out' and would not see it through to the end. Again it is rather arrogant of you to assume you know our bodies better than we do or that we are really to soft to cope with a bit of discomfort. I am sure that I can speak for the other two in saying that we have already been through hell and would go back there is we thought we could be healed this time.
I would really love to see you listening to somebody and being a bit more responsible in giving a warning.
Brenda