August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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lobbying on 21st Century Cures Act

Discussion in 'Advocacy Projects' started by searcher, Jul 18, 2015.

  1. searcher

    searcher

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    The 21st Century Cures Act has just passed the House and moving to the Senate. This is a chance to add funding for ME similar to what has been added for tick-borne diseases.

    I just wanted to write a quick post to see if there is anyone lobbying for ME patients in Congress. I am 99.9% certain the answer is no, but I wanted to confirm. @Nielk- is ME Advocacy doing any lobbying on this Act? Anyone else aware of any initiatives?

    Thanks all.
     
    searcher, Jul 18, 2015
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