I'm 100% better, can function again

[TigerLilea]

EBV can go dormant and come out years later due to a number of reasons...........big time stress being one. Plus their are numerous strains of EBV. You might have caught a different strain.

My symptoms with CFS are completely different than when I had mono back in high school. With mono I couldn't stay awake and slept for weeks straight. With CFS I have exhaustion without sleepiness.

 

[fablepd]

Hi . I'm on Provigil and for me (but i know that it works only a subgroup of ME/CFS patients) it really changed my life. Unfortunately it only works every 4/5 days. If i use it the second day i become extremely fatigued (more than the terrible normal situation) with extremely dehydration and eczemas. Since today i'm too on Phenypiracetam , without provigil i cannot see great differences (as if it doesn't help). After how many hours did you feel Phenylpiracetam worked for you ?
By the way, Provigil / Modafinil is included in the possibly helpful drugs for fatigue in the Italian Agenas Guidelines for ME/CFS (see attached file).
Any other experience ?

 

[fablepd]

My symptoms with CFS are completely different than when I had mono back in high school. With mono I couldn't stay awake and slept for weeks straight. With CFS I have exhaustion without sleepiness.

I developed ME/CFS with idiphatic hypersomnia after mono at age of 24.... ;(

 

[fablepd]

i'm very interested in this topic. I tried Phenylpiracetam without Modafinil (which is the real drug which helps me a lot, but unfortunately is doesn't work on the second day, so i can use it only every 4/5 days...) and i had a bad feel , as being over excitated mentally but with more fatigue, for example for walking or going outside..... no nice effect...
I took 100mg for three days then I abandoned it. But a friend is going to try it....

 

[drob31]

I have both ME/CFS brain fog and ADHD caused by meningitis, so reading is now difficult, and I find everything confusing!


I bought some phenylpiracetam, and tried doses up to 100 mg, and although it made me feel a bit more alert and clear minded, and boosted motivation, I also felt a little flatter in terms of my emotions. However, I do suffer from anhedonia and blunted affect (emotional flatness) anyway, so I am prone to this.

Piracetam I find has similar cognitive benefits, but produces far stronger levels of anhedonia and blunted affect, so I rarely use piracetam nowadays (but I successfully used piracetam for many years before getting ME/CFS).

However, I don't think this blunted affect side effect will occur in other ME/CFS patients trying phenylpiracetam, unless you suffer from blunted affect to start with.


The interesting thing I found with phenylpiracetam is that even on just a 50 mg dose, its cognitive and motivational benefits seem to last well into the next day.

Whereas I find piracetam wears off after half a day or so, and I find aniracetam wears off after just 2 or 3 hours.

Noopept 30 mg tends to work best for me, though technically this is not a drug of the racetam class.

I know this is an old post, but @Hip , have you ever tried pregnenelone for emotional flatness?

 

[Hip]

I know this is an old post, but @Hip , have you ever tried pregnenelone for emotional flatness?

I have, but have not noticed that much. I find pregnenolone may help a little with the emotional / stress sensitively symptoms of ME/CFS, but not really for the emotional flatness symptoms of ME/CFS. The supplements I do find help boost emotions a bit are listed in this post.

I wonder whether the emotional flatness might come from the HPA-axis dysfunction, since the hypothalamus plays a role in emotional responses.

 

[Cipher]

Hi @Hip! What's your current view on noopept, phenylpiracetam and other racetams? Do you feel like you develop tolerance against some/all of the effects that you get from them? Do you cycle any of them?

 

[Hip]

Hi @Hip! What's your current view on noopept, phenylpiracetam and other racetams? Do you feel like you develop tolerance against some/all of the effects that you get from them? Do you cycle any of them

I have tried quite a few racetams, but I always go back to the original and in my experience the best racetam: piracetam.

I don't use it much though because ever since developing ME/CFS, I found that piracetam causes an emotion-flattening side effect. But if I need to focus on a complex task, I will take some piracetam for a day or two, to get the task done. It's one of the only things I have found that counters the brain fog.

 

[Cipher]

I have tried quite a few racetams, but I always go back to the original and in my experience the best racetam: piracetam.

I don't use it much though because ever since developing ME/CFS, I found that piracetam causes an emotion-flattening side effect. But if I need to focus on a complex task, I will take some piracetam for a day or two, to get the task done. It's one of the only things I have found that counters the brain fog.

Thanks @Hip! Have you tried Selank or Semax?

 

[Hip]

Thanks @Hip! Have you tried Selank or Semax?

I tried selank but did not notice much.