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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. men100

    I need studies that support IVIG in fine fiber neuropathy

    @ryan31337 Hello, I am Spanish and in my public hospital they will try to approve the treatment the committee that decides these cases. That is why they ask me to take all possible studies with cases of improvement to support the request. I have tried 45gr. of IVIG privately. It is very...
  2. men100

    I need studies that support IVIG in fine fiber neuropathy

    Thank you, but those only work, I think, these: How We Treat Autoimmune Small Fiber Polyneuropathy with Immunoglobulin Therapy. (This does speak of significant improvement of the patients undergoing the study). Intravenous immunoglobulin therapy for small fiber neuropathy: study protocol for a...
  3. men100

    I need studies that support IVIG in fine fiber neuropathy

    Hello, they have accepted my diagnosis of fine fiber neuropathy in my public hospital and they ask me to take studies in which there are cases of people who improve or are cured with intravenous immunoglobulins. In my country the use of immunoglobulins is for compassionate use only. Can you help...
  4. men100

    Diagnosis of small fiber neuropathy by corneal confocal microscopy

    Hello again, I have already been given the report of the corneal confocal microscopy for the diagnosis of fine fiber neuropathy. It seems that the diagnosis is confirmed. I put the English translation in red. Are fine fibers recovered with IVIG treatment?
  5. men100

    Diagnosis of small fiber neuropathy by corneal confocal microscopy

    Hi. A specialist in autonomic nervous system and chronic fatigue syndrome has recommended me to check if I have fine fiber neuropathy. He told me there was a new test called corneal confocal microscopy. There are still weeks left for the ophthalmologists to give me the result, but they sent me...
  6. men100

    How to rule out an autoimmune process ?

    Hi, do you know if there is a way I can do the Mayo Clinic panel from Spain? I have contacted them but they have told me that I have to go in person to do it. It is a very long and expensive trip, I don't know if they understood me well.
  7. men100

    Results of the German Cell Trend laboratory for POTS

    @pibee but I understand that not all POTS are of autoimmune origin. Those that are not autoimmune should not test positive in any auto antibody. Regarding Sjögren, I have not done antibody tests but I do not have the typical symptoms. Even so if with 1 positive is enough, I will try to be...
  8. men100

    How to know if my POTS is autoimmune?

    I have finally sent my blood to the German CellTrend and I already have the results. I have given posivo in an auto antibody and in risk in another. In Spain they do not usually give inmonoglobulins, do you think that with these results I could use them? I understand that having a single...
  9. men100

    Results of the German Cell Trend laboratory for POTS

    @Hip @Gingergrrl @kangaSue Hello, I have finally sent my blood to the German CellTrend and I already have the results. I have given posivo in an auto antibody and in risk in another. In Spain they do not usually give inmonoglobulins, do you think that with these results I could use them? I...
  10. men100

    lymphocyte typing result

    Graphic, easier to see. Let's see if somebody gives me some clue as to what is happening in my immune system (and out of curiosity, what does that value mean?). Thank you.
  11. men100

    lymphocyte typing result

    Hi, I've done a lymphocyte typing. I have Chronic Fatigue Syndrome and POTS. What do you think it can mean? I do not see the immunologist in a month. Thanks!
  12. men100

    Can magnesium improve the symptoms of POTS?

    @Thinktank , but in case of deficit it seems to cause symptoms like those of the POTS. I do not know if it was magnesium or another component of CN Base, but if I read that there are people who have improved POTS with magnesium, I imagine they would have a deficit. My dilemma is now whether to...
  13. men100

    Can magnesium improve the symptoms of POTS?

    A week ago I started taking a medicine that is in Spain called CN Base and has many components of vitamins and minerals. A few days later I noticed an improvement in the post-exertion fatigue (it was more tolerable) and I notice that the pulsations go up less than before. I have not tried to...
  14. men100

    How to know if my POTS is autoimmune?

    Well, here I have few doctors available who know all these things and therefore I ask for experiences of people in other countries who will be more updated in POTS and Chronic Fatigue Syndrome. I guess not all POTS are autoimmune, but that's why I want to do the tests: to know if mine is or...
  15. men100

    How to know if my POTS is autoimmune?

    @Gingergrrl @kangaSue OK, then I understand that the German CellTrend analyzes are reliable and give a lot of information, but it would take something else to justify the use of inmonoglobulins. I sent them an email to inform me of some things, and I will do the same for the Mayo Clinic...
  16. men100

    How to know if my POTS is autoimmune?

    @kangaSue , Well, from Spain, what I have most accessible is to do the analysis of Germany. I suppose that, if they announce it, it is validated for the diagnosis of autoimmune POTS. I also have other symptoms and as my colleagues in the forum have told me, I am going to look at the mast cell...
  17. men100

    How to know if my POTS is autoimmune?

    In other words, does the German laboratory not perform specific autoimmunity analyzes for POTS? Because this is what they announce: and what they analyze is this for POTS: and this for Chronic Fatigue Syndrome: What does the Mayo Clinic or the University of the United Kingdom analyze...
  18. men100

    How to know if my POTS is autoimmune?

    Wow, that Mayo Clinic test seems very specific to POTS, right? They do it also in the German laboratory? The language barrier for me is quite important, it's a shame. It is assumed that if these autoimmunity tests are positive, I could benefit from the immunoglobulins, right?
  19. men100

    How to know if my POTS is autoimmune?

    Good morning everyone and thanks for the answers. I do not think the origin is mushrooms, but it is true that in my current house there is one in the bathroom grilles (and in the house where I grew there was also a little). Where I live now, I have this: Thank you, it is a bit far but in my...
  20. men100

    How to know if my POTS is autoimmune?

    Good Morning. I am a patient from Spain and I do not speak English very well, so I use the Google translator, excuse me if there is an error. I have POTS and I am researching all forums, studios, etc. to see if I can find a cause and solution. I have verified that in the USA, if the POTS is of...
  21. men100

    Result of heavy analysis

    Yes, I have recommended 3 doses a day (breakfast, lunch and dinner). Just as it is 3 shots, increase the dose so that they eliminate some accumulated metal, right? It is supposed that the medication has prescribed it for that precisely. I'll start with one in the morning and see how, I hope I do...
  22. men100

    Result of heavy analysis

    But do you consider it dangerous to remove metals with the supplements that I put before? I am referring to the CN Base and the CN-3 together with the fungus Mico-Polypor? I do not really see an aggressive therapy in chemical plan, it seems rather "natural". What scares me is getting worse by...
  23. men100

    Result of heavy analysis

    Thanks for the answers! I'm glad to hear that arsenic takes energy away from me by obstructing ATP. What you say that the supply they have given me is a small amount, I do not know what to say. People in the Spanish forum report adverse effects if they take a lot of these supplements. In...
  24. men100

    Result of heavy analysis

    With the CN Base and the CN-3, many people in the Spanish chronic fatigue forum have noticed improvement (although some have to lower the dose due to discomfort). They say it is an excellent detoxifier. The fungus I imagine is to remove toxics from the blood and expel the body. For the...
  25. men100

    Result of heavy analysis

    The range of heavy metals starts at 0, so I imagine that the less heavy metals accumulated, the better. It is possible that high levels (although not much, less the arsenic that is doubled), are not helping the cell to work well and have blockages. I'm not a doctor, but that's what I understood...
  26. men100

    Result of heavy analysis

    I want to think that the analyzes are validated and it is scientifically proven that these levels can be harmful. If not, it would not make sense that they were for sale, there has to be a control. I did not have any recent x-rays. The rest of metals I do not know where I can have absorbed...
  27. men100

    Result of heavy analysis

    First, apologize for my English (I'm from Spain). Today the doctor has finally looked at the analysis of heavy metals in the hair follicle (it is not the same as in hair) and I have 4 tall metals (this test was sent to me by Ceacero). It says (the doctor) that it can be the cause or at least...