-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Blog entries by PoorlyPixi
I've read the lovely comments and advice on my previous entry, and I'm very grateful for the caring advice I get on my entries, thank you all :)... Rather than replying there, I thought I better just make a new entry... For the time being, I don't have to worry about which doctor I'm going to...
With only 3 hours of sleep, I finally left the house for the first time in a long time, a trip to the doctors surgery for the first time in just over a year; my last trip there was June last year, when I was told that there was nothing they could offer me, that I needed to wait for the hospital...
Well, after a couple of bad days in a lot of pain and calling up for a doctor to come out to the house, I finally got to speak to a doctor... and I felt like she listened, heard me. She was here for an hour, a good 30+ minutes more than I expected from a home visit, and she read my list of...
A distressing night. After a day of little to no head symptoms, my head decided to play up as soon as I went to bed. A huge Zzzap! went through my head like a sudden vibration and I shot out of bed because, although brain zaps are now nothing new to me, they come and go in phases, and for weeks...
It's been a while since I came online. I'm sure I had a topic for the blog, but for the life of me, I've forgotten it. I guess I'll just write a mishmash of what's been going on. Or not going on!
I got an appointment to see a dietitian in another county that's a good hour's drive away, early...
After approximately 8 months of being sans gluten (at least in my diet), I'm faced with the decision of whether to continue, or conclude it early. I had originally planned to keep it going until Autumn this year, after getting some work done and pushing for some progress over the summer, ideally...
Our family got into an argument last night, but sadly, the subject is nothing new. My mother's disregard for my dad's M.E has always been apparent, at least within the last 5-7 years, but now with dad's condition gradually worsening before my very eyes, her disregard and his frustration has...
Well, my dad wrote two letters about my situation: one to the head gastroenterologist at the hospital, and one to his GP. He sent them off nearly 2 weeks ago, and as expected, we have yet to hear anything. It isn't surprising, and it's probably true that his letters were unusual. The doctors...
I have written out a full list of the symptoms and sensations I experience, what for, I'm not entirely sure, but I thought it might be helpful if I can get anyone to read it and consider me seriously. Heck, I'll thrust it at anyone! It's constantly being updated as new sensations arise and...
It's been a full month since my last visit to the forum and my flaky streak continues as my online footprints prove me to be a 'hit and runner.' When people talk about 'online footprints' my first thought is, 'well the Tory government can bloody well see how sick I am because I post so much and...
I'll begin this entry by confessing my concern about whether or not I am making this blog correctly. I hope I'm writing in the proper place and not Lord knows where on the forum. Frankly, I feel too ill to have any real idea of what I'm doing. Half a dozen typos already, it's a wonder how I...