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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Whatever it takes

Saturday, July 18, 2009

I'd like to say I do this for the good of mankind. That that's why I write here.

I'd like mankind to be healthy and happy, don't get me wrong.

But I am not here on the net for mankind.

I am here for me.

Because the silence from the rest of the world has been shouting at me for years.

For years.

And now I am shouting back.
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Well said, Jody,
Reaching out to fellow sufferers throughout the world lets us know we're not alone. There REALLY are people out there who understand the frustration & (in my case - don't know about you) anger, that to others - we are invisible. I keep to myself as much as possible, I can't cope with people talking AT me & dismissing my symtoms as trivial. "Get over it" they'd said in the past. How do you get over, day after day, week after week, year after year of constant waves of pain assaulting you every day? It's not a 3 day migraine, it's ever day for years on end. I had one pain free day on Easter Monday in 2008.

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