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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Well, so much for that neurologist.Honestly I don't think you missed anything that could have been of any help. I've been to 7 different neurologists over the years and none of... -
The bulldozerIf you can think of a way to improve your partner’s sleep quality, whether via supplements or medication, I think that’s a good start. I assume...
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The bulldozerThat's tough. I suppose we all have our own reasons to keep going. One thing that keeps me going is that you never know when there might be a...
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Say what? Book title misspelled on cover?And ... as of last Wednesday, July 17, 2024, day before this blog entry was posted, book with misspelling on spine needs revision on pages 60, 61... -
Yay! Made it to writers group today! & down to river too.Thanks! 🙂 That would be today prior to 1pm, am home now. Story's week is a complete fiction other than the neighbor's bird JayJay the cockatiel...
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Years ago, I attended a holiday work party at a nice little Italian restaurant in town. There was good company, good food, and the wine was flowing. About halfway through dinner, and after glass after glass of wine, I decided it was time to use the bathroom. Like any good drunk person, I brought...
Some more navel-gazing, some years back …
In life’s greatest celebrations, one must drink champagne. Not only does its company imply a heightened sense of importance for the given moment, it creates an air of camaraderie. When you raise a glass to make that toast, it’s definitely serious...
Flagrant misuse of cream cheese is common practice in Germany. It’s also what I’d come to identify as a public health problem for American expatriates living in the country. Unfortunately, many may not even realize the seriousness of this epidemic.
Let me provide an ordinary example of this...
The response had been well-nigh instantaneous. Sirens blared in the distance immediately after I ended the call. By the time I made it down the four flights of stairs of our fourth floor walk-up in Manhattan, there were fire engines, an ambulance, and utility trucks outside.
It was...
Gone were the days of cruising through life without having to witness an old man’s bare ass strutting by. The distressing scene in Basic Instinct where Michael Douglas's backside is exposed was enough for me to handle in the last fifteen years. But times had changed. I was living in Germany.
It...
My worst year of illness was 2017. For most of that year, I needed help standing up to pee in a bed pan that was two steps to the right of my recliner, where I lay, blinds drawn, all day, every day. Symptoms were severe, nonstop. I was routinely spoon-fed by my wife. Any noise would exacerbate...
The healthy years: a class to kick a*& in Germany …
The widely popular Korean martial art Taekwondo mostly involves fast, combative multiple-angle kicks and strikes (jabs, chops, blocks, and choking, too). American-style Taekwondo incorporates a more comprehensive approach and includes many...
“I just broke up with George. He said he understands.”
“Sorry to hear that,” my wife texted back.
It had been a brutal winter. In the front bumper of our car there was a large hole from a snowbank accident the previous winter. So my wife had resigned to keeping a shovel in the trunk this...
The healthy days: from Germany to ball in Vienna, Austria …
It was late on a Friday morning and I was sitting at my work station taking big gulps of my morning cup of Joe. There wasn’t much work to be done, and I was feeling restless, adventurous, and romantic all at the same time. Maybe it had...
How far would you go to to convince someone of something? Early on in my illness, I would stage falls to the floor so my wife would pay attention to how sick I was becoming. I’d complained of unrelenting fatigue and weakness and a whole host of other severe symptoms, but I was not fully...
The healthy days: an incident in Sicily …
Our guidebook was right. It was beautiful, and nearly deserted. As we slowly walked up the rocky path toward this celestial beach in Eloro, Sicily, I gave no thought to the fact that I had just left my wallet inside our rental car, which was parked...
The healthy days: a little mishap at a Manhattan apartment …
When I’m on vacation, I eat like a camel. There’s a lot of gorging and then sitting around for hours before the next feasting takes place. Pizza, sandwiches, and pastry, whatever I can get my hands on. It’s primitive man at his best...
I am rather embarrassed to admit that I had three major medical episodes in the past that were all psychosomatic in nature.
The first occurred was when I was living in Germany. I had a whole host of physical symptoms, most notably severe sharp pains in my chest and referred pain in my back...
TENNIS COURT
My next door neighbor has a tennis court in his backyard that is visible from my bathroom window. In summer, I sometimes look out the window and imagine a fierce tennis match taking place between two polished opponents. I welcome this bit of excitement happening in real time that I...
When much of your life has been stripped away, you come to appreciate some of the simplest, most basic things—food and water, the Internet, a warm breeze, nice music, the trees, your comfy pajamas, a nice pair of socks, the appearance and company of another person, your pet, and the list goes...
It’s 2018. I’m seeing a psychiatrist once every two weeks: a meathead Russian guy with a large pot belly, a thick accent, and a disheveled head of bushy gray hair. He is tall. I lie down - fully reclined - in the car to get to my appointments. Severely impaired, I walk ever so slowly and...