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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Your silence is killing M.E.

Grigor

Senior Member
Messages
462
Location
Amsterdam
I've always feared HIV/AIDS.

I've always been inspired by ACTUP.

I've always been stunned by the passivity in regards to HIV/AIDS, ME and now #LongCovid despite the immense suffering.

I've therefore written this blog about activism, fighting back, love, giving a damn & revolutionizing medicine.

Available in Eng, NL & Google translation.

Read, share, let's be loud!!!

http://anilvanderzee.com/your-silence-is-killing-m-e/

❤️
 

Rufous McKinney

Senior Member
Messages
13,389
Read, share, let's be loud!!!

I read thru that and enjoyed your perspective, including- that we must Act.

One issue perhaps is the ME community- is not as cohesive as the gay community. We are many random people with a whole range of- circumstances scattered here and there.

We are also a very much smaller percentage of- the overall population.

I have never met- someone sick like me, in person.