• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Your silence is killing M.E.


Senior Member
I've always feared HIV/AIDS.

I've always been inspired by ACTUP.

I've always been stunned by the passivity in regards to HIV/AIDS, ME and now #LongCovid despite the immense suffering.

I've therefore written this blog about activism, fighting back, love, giving a damn & revolutionizing medicine.

Available in Eng, NL & Google translation.

Read, share, let's be loud!!!



Rufous McKinney

Senior Member
Read, share, let's be loud!!!

I read thru that and enjoyed your perspective, including- that we must Act.

One issue perhaps is the ME community- is not as cohesive as the gay community. We are many random people with a whole range of- circumstances scattered here and there.

We are also a very much smaller percentage of- the overall population.

I have never met- someone sick like me, in person.