hanchuchu posts from China. We need Central America also.
I'll put the demographics in now.
I still need the symptom list to fill in the rest of the questions, or if you want to do that part, I'll PM you the password and you can edit it yourself.
ETA:
I made the demographics a separate page (page 2)
Sample XMRV Positive Survey
This is a work in progress! Here's the symptom list I have so far, but it needs to be continually changed and improved until we get it right. Some terms are not clear, or are redundant or are rare. I'm copying it below so everyone can help.
What symptoms do XMRV+ people have in common?
1. Abdominal pain
2. Aching, burning shooting pains anywhere in the body
3. Alcohol intolerance
4. Allergies
5. Alternating diarrhea and constipation
6. Arthralgia without joint swelling
7. Ataxia (unsteady gait, inability to coordinate voluntary movement)
8. Auditory processing dysfunction
9. Bladder pain
10. Bloating
11. Blood pressure drop after many minutes of standing
12. Blood pressure drop immediately upon standing
13. Constipation
14. Diarrhea
15. Difficulty retrieving words
16. Difficulty sitting up or standing after minimal physical or mental exertion
17. Difficulty with mathematics
18. Dizziness, especially when standing still
19. Dyslexia
20. Easily confused
21. Easily distracted
22. Excessive heart rate during 10 minutes of standing still
23. Excessive urination at night
24. Fainting periodically
25. Fatigue that is incapacitating, relentless, unrelieved by sleep
26. Fluctuations in body temperature
27. Fluctuations of cold and hot in different parts of the body
28. Flu-like or hangover feeling after minimal physical or mental exertion
29. Forgetfulness (primarily short-term)
30. Frequent awakenings
31. General flu-like feeling
32. Generalized muscle pain
33. Headaches especially when standing still
34. Hypersensitivity to light
35. Hyper-sensitivity to medications and their side-effects
36. Hypersensitivity to motion
37. Hypersensitivity to odors
38. Hypersensitivity to sound
39. Hypersomnia (excessive sleeping)
40. Impaired mental abilities after minimal physical or mental exertion
41. Impaired speech after minimal physical or mental exertion
42. Inability to block out background noise & focus on conversation
43. Inability to cope with fast-paced tasks
44. Inability to focus vision and attention
45. Informational overload with inability to multi-task
46. Intestinal irregularities
47. Intolerance to extremes in air temperature
48. Irregular breathing especially when standing still
49. Irritable bowel syndrome
50. Jerking or twitching during sleep
51. Lightheadedness especially when standing still
52. Liver pain
53. Loss of adaptation to situations of overload
54. Loss of balance and clumsiness
55. Loss of muscular coordination
56. Low body temperature
57. Lymph node tenderness (cervical or axillary)
58. Mild fever
59. Muscle twitching
60. Muscle weakness
61. Muscular weakness after minimal physical or mental exertion
62. Nausea
63. Nausea especially when standing still
64. Neuropathy (damage to nerves)
65. New food sensitivities
66. New onset headaches
67. Night sweats or other sweating episodes
68. Nightmares or agitated dreams
69. Non-restorative sleep
70. Numbness
71. Occasional dyslexia
72. Occasional slurred speech
73. Brain fog (overall feeling)
74. Pain in lower abdomen
75. Painful urination
76. Palplitations with or without cardiac arrhythmias
77. Prostate cancer
78. Recurrent sore throat
79. Shooting pain
80. Shortness of breath
81. Slow information processing
82. Slow response to verbal stimuli especially when standing still
83. Sore throat
84. Subnormal temperature
85. Sweating especially when standing still
86. Temporary immobilization from overload
87. Temporary paralysis after minimal physical or mental exertion
88. Tender lymph nodes
89. Tinnitus (ringing in the ears)
90. Upper spine and neck pain
91. Urgency to lie down especially when standing still
92. Urinary frequency
93. Variations in sleepiness and energy throughout the day
94. Visual changes when standing
95. Wasting
96. Weakness
97. Weight change with loss of appetite or abnormal weight gain
98. Worsening of symptoms under increased stress (physical or emotional)
I see that you were putting symptoms into categories. I think it's too soon to do that. If we simply have a long list of symptoms, can it be broken up with spaces, say, every ten items?
I do think we need categories, though, and will suggest a couple in a minute.