In short, sending angry tweets to a writer that's just written an excellent overview of the topic just because he omitted an interview seems massively counterproductive.
This isn't about Ron. It's about the content that he told the reporter in his interview. Having just been in a pretty intense 3 days of the science of ME/CFS, it was shocking to me to see an article still reporting that there's a big debate about PACE. The debates at the science meetings were about autoantibodies and gene expression, et al!
It seems to me that maybe in the UK people are so used to being in a country where they are mostly denied medical care for their disease, told it's "false illness beliefs", advised by persons in authority to exercise, which makes them worse, and being spoken to with sarcasm, disdain, and patronization, that any small mention of the "debate" that includes a mention of science seems like a "balanced" article.
When talking about the planets, do we still write a "balanced" article that includes the possibility that the earth is flat?
What Ron told him, among other things, was that what is happening to patients in the UK and other countries that have bought into the PACE view, is barbaric, and that the medical and scientific communities there were contributing to massive suffering, and that the PACE Trials were bad science, could not support their conclusions, and should be retracted.
That any scientist reading them should be shocked that they were even published, and that they make perfect fodder for a class on finding mistakes in publications. That is the story that needs to be told.
I don't care if Ron's name is in there. I want them to tell the REAL story of what is happening there. It's horrendous. THAT is the story that needs to be told, not some "balanced" view that makes it seem possible that PACE provides any data for anything and that CBT and GET are an alternative to be debated.
The debate now is over data and mechanisms of the DISEASE! The suffering caused by this stupid debate and the extent of the science were not in that article. I think it's a shame.
And time for all scientists and medical people to get into the 21st century and pay attention to SCIENCE in an open minded way, and stop contributing to the suffering of millions of people.
In the UK patients I know can't even get a saline drip! Ridiculous!
Where is the article that screams "PACE DEBUNKED", or "Accumulation of myriads of scientific studies unraveling the medical mystery of ME/CFS", or "How can we end the suffering of millions?".
So no, I don't like the article. I'm not balanced. LOL