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Hi all,
Okay so pretty much exactly what the title says: what type(s) of advocacy do you consider would be most effective for us and what are your reasons for that position? Also please cite any sources you would like, including your own experience.
Some Choices:
Additional (Couldn't Offer Because Maximum of 10 Poll Options):
Thanks everyone and if you could only select four or less that you think would work best (just 1 is also fine).
Additionally if anyone feels I have left something major out then make your own thread (feel free to use the same title, just put (NEW) or something in the title to differentiate)
Okay so pretty much exactly what the title says: what type(s) of advocacy do you consider would be most effective for us and what are your reasons for that position? Also please cite any sources you would like, including your own experience.
Some Choices:
ACT-UP &/or "Wounded Knee 1973" Style Rallies and Sit-in's
Rallies/Testimonies at specific events (such as the CFSAC).
Letters/Petitions (@ Congress, Newspapers ...) signed by many of us as a community.
Letters or Petitions (@ Congress, Newspapers ...) written individually.
Editorials/Articles in Major Newspapers or News Sources.
Documentaries on ME/CFS.
Fiction "Blair-Witch Project" film on ME/CFS.
Alliances with other Neuroimmune Disorder Advocacy Groups (e.g. those for MS).
Researchers and Clinicians form an Advocacy Group (ala ILADS in Lyme Disease).
Other -- Please Post and Mention in "Title."
Rallies/Testimonies at specific events (such as the CFSAC).
Letters/Petitions (@ Congress, Newspapers ...) signed by many of us as a community.
Letters or Petitions (@ Congress, Newspapers ...) written individually.
Editorials/Articles in Major Newspapers or News Sources.
Documentaries on ME/CFS.
Fiction "Blair-Witch Project" film on ME/CFS.
Alliances with other Neuroimmune Disorder Advocacy Groups (e.g. those for MS).
Researchers and Clinicians form an Advocacy Group (ala ILADS in Lyme Disease).
Other -- Please Post and Mention in "Title."
Additional (Couldn't Offer Because Maximum of 10 Poll Options):
Blogging (can't stop the Net!).
Intrapersonal (inform all of your family and friends about ME/CFS as best as you are able).
Research Donation Schemes (e.g. somebody offers to match all the donations raised for "Project X(MRV?)."
Someone should sue the Federal Government for (Your Title Here).
HOW COULD YOU FORGET ________?!?! (Please Define Activity in Title of Your Post)
Intrapersonal (inform all of your family and friends about ME/CFS as best as you are able).
Research Donation Schemes (e.g. somebody offers to match all the donations raised for "Project X(MRV?)."
Someone should sue the Federal Government for (Your Title Here).
HOW COULD YOU FORGET ________?!?! (Please Define Activity in Title of Your Post)
Thanks everyone and if you could only select four or less that you think would work best (just 1 is also fine).
Additionally if anyone feels I have left something major out then make your own thread (feel free to use the same title, just put (NEW) or something in the title to differentiate)