@hmnr asg I'm sorry you've had this disappointment over your trip. Don't worry about bumming us out- we get the chronic illness thing and would rather hear how you're doing for real. No need for pretending here.
Pain is a beast, but I try to take heart that it is a shapeshifting and ever changing beast. At least you get some variety! Like
@pamojja I recently had a good pain experience- My massage therapist tried a little craniosacral therapy on me and it gave relief for almost 48 hours! Felt lovely. I was tired as an amoeba afterwards, but it might have been worth it. I'm definitely going to experiment with it again.
Hugs to you, if they don't bother that TN.