What would YOU say?

[Nielk]

1. Most of what most doctors know on this topic is obsolete.
2. Most of what we know about ME has been learnt in the last few years.
3. A doctor is either up to date or out of date, there is no middle ground, and we can spot the out of date doctors quickly.

for #3 - Just look at their eye roll when you explain what's wrong with you.

 

[Tristen]

Think of the worst case of the Flu you ever had, multiply that by 10, and imagine having that 24/7 for decades....that's us.

Labeling this disease under it's least troublesome symptom has lead the world to believe we are malingerers, when it fact we are severely ill.

Someone must ask why we have been left as roadkill for the psych camp when we have volumes of documented evidence showing a physical illness of a profoundly debilitating nature.

 

[Insomniac]

1.) Research shows it can more disabling than AIDS, MS and Cancer

2)It is not just tiredness or Fatigue - those are the least worst symptoms

3)Graded exercise therapy and psychiatric/psycology approaches worsen M.E more than anything.