I was thinking about this for a long time. I would may be propose a way how to raise some money for CFS research and also how to save some money of CFS patients who buy the supplements.
So I would propose elektronic procurement (I am not sure about if I found a good word). The patients would write how many supplements they woud like to buy. Then you make a call to the companies which sell the supplements that you want to buy some supplements for a group of patients and that there will be a competition throught the computer softwer(page) for elektronic procurement. It depends on the product but at average you can save with this system 30 %. Also for example if you want to buy some supplements just only for 100 dollars you will never get a discount like if we would be like a group which would like to buy for thousands of dollars. I have also a friend who does it and if you would find my idea good - I can ask him exactly how does it work. So then on the end everyone could decide how much he would like to send from the discount for the CFS research. Also normaly the personne who provides the electronic procurement ask - I dont know exactly how much but I think about 5 % from the price of the shopping - from the company who won the electronic competition. So we could ask also this provider to give us some % from this money for the research. And we could do this not only with medical supplement but also with other things which we buy like for example computers, office stuffs (paper, printers,...), cars,....whatever we buy. And it doesnt have to be only patients but also our friends, families and other people who would like just only to save money. Whit bigger group of the people you may be need a bigger cooperation but at least we can try it once. Just if you like my idea let me know and i will ask my friend if its also possible to manage it for bigger group and which kind of things are good for this way of buying. Hopefully I could explain good my idea with my english.
And on the end here is a small calculation:
If there would be for example 500 people who would like to buy supplement everyone at average for 100 dollars so we would make together the shopping for 50 000 dollars.I will be little bit pesimistic so lets say that we would get 20 % discount - so its 10 000 dollars - so this could we use for CFS research. Also the personne who provides the system would get 5 % from 50 000 dollars - what is next 2 500 dollars and we could get also some dollars from this sum
So do you think are we able to organise something like this?
