What do you do to find joy and meaning in life?

Messages
84
Likes
183
It’s a big question. I know. But I’m curious about what you do to make your day to day life meaningful. I’ve only been sick since April 2020, but I don’t think I will get any better now. So far I have spent most of my time online reading about ”long covid”, POTS and ME/CFS. I’ve been trying different supplements or drugs to get better but nothing is helping. I don’t want to spend all my life in forums or facebook groups searching for a cure that don’t exist. So what do you do with your limited energy? I realise not all of us have the same limitations but I’m curious about what you do to pass time and find joy? None of the things I used to do as a healthy person is possible any more. I was very active and sports was my life. I will need to find new things to do. I live alone and have no kids.
 
Last edited:

bensmith

Senior Member
Messages
984
Likes
1,975
Learning! That is what inwould donif healthy.

hobbies and entertainment come next. But again not healthy enogunfor that.

then help others. Then last meditation/spirtiual stuff.

the biggest thing for me that was good isntjst life has no meaning! Do whatever thenfuck youwant! Some take that as negative but me i find it liberating.
 
Messages
84
Likes
183
I should add maybe that I don’t have huge problems with brain fog. I seem to be able to read, use phone, watch TV for a couple of hours without problems. But I’m not able to think about anything else than trying to get better. If I watch a game of football on TV, which I would have enjoyed when I was healthy, I lose interest in 10 minutes and look on my phone in search of that magic cure. So I need something that keeps me interested.
 

Hipsman

Senior Member
Messages
351
Likes
644
Location
Ukraine
I’m curious about what you do to pass time and find joy?
I found watching playthroughs or streams of video games I like is really good for this as you use allot less energy then when playing yourself. For me the most important thing here is the person doing the commentary.

Also, the internet is too distracting to focus on one thing, sometimes I just download a playthrough or movie and turn off the internet, so you don't feel the urge find something better to do.
 
Messages
6,054
Likes
14,288
But I’m curious about what you do to make your day to day life meaningful. I’ve only been sick since April 2020, but I don’t think I will get any better now.
I suspect many of us...spend more time than we care to admit, trying to cure ourselves, find cures, contemplate cures and cheer lead for those with the intent to cure.

I have intense cognitive issues but can manage to escape some into reading online....short things. Short paragraphs, short concepts...skim. Lots of skimming. I can enjoy a series or movie, so I feel lucky there.

Watercolor painting videos. I watch those, as I am trying to do some art myself, but finding that the actual doing is yet another ME-limited exercise. Art involves- holding a bunch of ideas/concepts and thoughts together in your brain with the intention that something will then manifest on paper. Its- real tiring. So 15 minutes of messing with some paints, I'm now tired and stop and I am not pleased with my 15 minute endeavor and i must persevere none the less. Because Persevereance furthers. But now my neck is aching and my back can't sit there long.

Oh well. But watching the videos can be very meditative and enjoyable.

Another related venue is: You Tube videos of , say ALL the paintings done by one painter, with music. Turner- go find Turner....William Turner....love love that stuff.

I then have moments of reliving music I like. A year ago, I was hardly able to listen to more than say one song...so I'm a bit better...one year later...a year of massive resting...I can listen to music for a little while without too much PEM after.

Ekhart Tolle videos....Mooji...these are enjoyable calming escapes that allow one to feel some connection to others, some internal peace.
 
Yes, being physically active was basic for me, too.
Very light yoga helped me to find at least a little pleasure in my body again.
Being outside, and "feeling" the weather is important to me. Doing a walk in the rain or when it's windy, or just sitting somewhere feeling the sun on my face.
Reading national and international newspapers every day makes me feel like I am still embedded in the greater world and take part in it.
And mindfulness, to practise actually noticing even tiny flashes of joy during everyday tasks.
 

Sledgehammer

Senior Member
Messages
270
Likes
521
Not having the ability to be as active as I once was was hard to cope with at first but now I just accept it.
I used to walk for miles, canoe, rock climb, swim, pothole, the list was endless.
Now I just feed the brain with mostly computer related stuff like programming when the brain fog allows me.

I do believe your surroundings can play a big part in your mental health so I will go out and try to get away from the noise created around our home. There are many open spaces locally where you can get some respite and they help me cope with this disease.
 

Treeman

Senior Member
Messages
257
Likes
617
I have had a spiritual side for sometime that helps me be patient until my health improves.

I have a rigid routine which helps and family including an 11 year old daughter that needs love and support.

I can do some house chores and spread them over the week into about 20 minute chunks a day.

I listen to music a lot of the time.

I read others experiences and try to find something that may help me.

I have a vintage Lambretta scooter and have ridden for around 39 years. I can still usually get a half hour ride a week. I'm moderate and unable to work.
 

Strawberry

Senior Member
Messages
1,595
Likes
3,404
Location
Seattle, WA USA
Oops :oops: The scooter is a great idea. I’m still getting the balls to ride on one. My entire city walks constantly. My walk consists of going to the mailbox or taking the garbage out. I’d love to ride a scooter for a mile “walk.”
 

Treeman

Senior Member
Messages
257
Likes
617
Oops :oops: The scooter is a great idea. I’m still getting the balls to ride on one. My entire city walks constantly. My walk consists of going to the mailbox or taking the garbage out. I’d love to ride a scooter for a mile “walk.”
That's how I use mine too. I can go to the shops, park outside the door and walk in. Much easier than using public transport and uses much less energy. Also, in and out of the traffic so the journey time is shorter saves more energy.