Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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You go to Congress, they can actually put aside money and there is one really important tool they have. There is something called the Office of Congressionally Mandated Research. This is an Army office. It comes out of the DOD budget, a very healthy budget one might say. The Office of Congressionally Mandated Research and that is absolutely the place where advocacy can put real committed dollars to an illness.
If you are a veteran affected by CFS, or if you know someone who is, please get in touch with the office at cfidsadvocacy AT cfids DOT org. Your email will be kept confidential.
Is "affected by" the same as diagnosed with?
My Dad is a Vietnam veteran and while he's healthy, he's certainly been affected by my illness. Would that count?