Hopefull,
I am so sorry you’re in a bad place. What I can say, is I know, because I’m in exactly the same place.
The sour taste/coating in the morning, the crushing weakness, and the non stop nausea. Lump in my throat that won’t go away. Everything I’ve tried that was supposed to help either does nothing or (usually) makes it worse. It’s like a parallel universe where nothing works. I’m happy for those that have found relief, but it’s so frustrating when you read about supplements and cures that have helped others, yet they do nothing (or worse) for us.
What I think is happening, is at night while we are asleep, gas is pushing up as a vapor past the stomach into the mouth. The gas is from dysbiosis, a very out of balance digestive system. The fatigue is a result of poor absorption, stress, toxins, and possibly low iron.
Although the wrong foods can add to the problem, I seriously believe it’s not going to solve it either. I’ve felt better, worse, with no change in diet. There has to be another variable.
My gastro has done endoscopy and colonoscopy, found nothing. He felt it’s a neurological problem, had me start taking mirtazapine last May, he claims it’s helped many of his patients with similar symptoms. I had a horrible flare up in symptoms when I started. They tapered off and I had a couple of OK months. Then the worst crash ever last Oct, been house/bed bound since.
I saw him last week, and showed him Dr. Chia’s research on enterovirus; at first he wasn’t too receptive, but now thinks it could be the cause. Both he and my PCP wrote letters referring me to him, we’ll see what happens.
All I can say is what I think I know at this point,
1. It’s possible we have a virus or bacteria disrupting our system, co existing like a parasite. For those of us with gastro problems, it’s in our gut, possibly in the CNS as well. Given time, our bodies should have recovered and rebalanced, but can’t.
2. We have a neurological/chemical imbalance as well, possibly caused by #1. Antidepressants may mask symptoms, but not indefinitely.
3. We have absorption/methylation problems, possibly caused by #1. Attributes to fatigue.
4. Until recently, I’d never tested iron levels, mine are off. Leads into the theory of our bodies “hiding” iron from circulation to withhold it from bacteria. Doctor wants me taking iron, so far, not going so good. Taking lactoferrin now, too soon to tell.
I don’t know what supplements/remedy’s you’ve tried, but like myself, it sounds like quite a few. In the past times when I’ve somewhat recovered, there was no “cure”, just rest. I keep telling myself that, and I can get better without some magic bullet. Where I feel I’ve blown it, was at those times to do more to capitalize on the improvement. I always seem to try helpful things when I’m already in the tank.
You are not alone, others like us have gotten better, and we can too. The mind battles we go through are as bad as the illness itself. In the meantime, we can compare notes and help each other with encouragement.
I too, will be hopeful for you today...