This is all a plea from one of my dearest ME friends. I care for them greatly, and it would mean the world to me if someone could help them, they are in dire need...
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They write:
A plea from a person suffering from very severe myalgic encephalopathy or M.E.
The limits imposed by my illness are preventing me from fully caring for myself in the stressful environment of my home. Stability, consistency, care and compassion are necessary as a foundation for recovery, and they are not available in my living situation. This contributes to the decline in my health, which increases stress in the home, it’s a cycle that I need help to escape.
My father works long hours, and my mother’s health is compromised by four autoimmune diseases. They are not able to manage the organizational, emotional, and physical challenges of my condition themselves. My parents are using denial as a coping mechanism to avoid being overwhelmed, this has left me struggling to meet my basic needs. Our home is chaotic, and there’s been no progress made to improve matters.
I fear for my health while living here. The situation is desperate, as I’ve become unable to sustain both the effort of managing my illness and household affairs. With the lack of official treatments for this condition, State wards or nursing homes are not ideal and while I have begin processes with social services it is extremely arduous and slow.
My intuition is that a better environment will allow me to at least improve to a more autonomous level. A private nurse or caretaker with a high level of empathy and organizational skills would be a blessing. Given the predicament I believe my family would support a move financially, and I am in the process of applying for disability aid. I hope to regain my independence once I’m able to focus on my health, without the constant stress of living in my current home.
If you or you know of anyone who can help me in these regards please let me know.
Central Northern New Mexico, USA
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Please if you can help DM me ASAP
Many thanks,
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They write:
A plea from a person suffering from very severe myalgic encephalopathy or M.E.
The limits imposed by my illness are preventing me from fully caring for myself in the stressful environment of my home. Stability, consistency, care and compassion are necessary as a foundation for recovery, and they are not available in my living situation. This contributes to the decline in my health, which increases stress in the home, it’s a cycle that I need help to escape.
My father works long hours, and my mother’s health is compromised by four autoimmune diseases. They are not able to manage the organizational, emotional, and physical challenges of my condition themselves. My parents are using denial as a coping mechanism to avoid being overwhelmed, this has left me struggling to meet my basic needs. Our home is chaotic, and there’s been no progress made to improve matters.
I fear for my health while living here. The situation is desperate, as I’ve become unable to sustain both the effort of managing my illness and household affairs. With the lack of official treatments for this condition, State wards or nursing homes are not ideal and while I have begin processes with social services it is extremely arduous and slow.
My intuition is that a better environment will allow me to at least improve to a more autonomous level. A private nurse or caretaker with a high level of empathy and organizational skills would be a blessing. Given the predicament I believe my family would support a move financially, and I am in the process of applying for disability aid. I hope to regain my independence once I’m able to focus on my health, without the constant stress of living in my current home.
If you or you know of anyone who can help me in these regards please let me know.
Central Northern New Mexico, USA
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Please if you can help DM me ASAP
Many thanks,