OverTheHills
Senior Member
- Messages
- 465
- Location
- New Zealand
Many of you will remember the successful Time for Action/ What have you done for me lately? Campaign.
Well frankly I don't think Mr Collins has delivered a lot to patients in the last year ... lots of talk, lots of intentions but in terms of actual, patient-affecting change, not so much. A name change for our disease. Wow.
So I thought: he's going to be having a lively, fun, family Xmas with lots of singing and food and maybe a glass of wine. We're going to be having our sort of Xmas. Quite different. So I thought it was time to spoil his a little bit by prodding his conscience.
Not being American I don't really understand what is in the remit of the NIH and what's not. And I have no talent for rhyme at all. SO what is our partridge in a pear tree? What is do-able and will really make a difference to patients inside a year, next year? Can we make it into doggrel (George?)?
Things like
- Completely reworked NIH website
- Doctor education
- Transparency with patients
- FIVE TREATMENT CENTRES (or whatever they're called that the CFSAC have asked for).
Now it may be too late for the Xmas email to get going, but I thought I'd see what you all think about what we can and should remind him about. So silly or sane, what do you think?
OTH
Well frankly I don't think Mr Collins has delivered a lot to patients in the last year ... lots of talk, lots of intentions but in terms of actual, patient-affecting change, not so much. A name change for our disease. Wow.
So I thought: he's going to be having a lively, fun, family Xmas with lots of singing and food and maybe a glass of wine. We're going to be having our sort of Xmas. Quite different. So I thought it was time to spoil his a little bit by prodding his conscience.
Not being American I don't really understand what is in the remit of the NIH and what's not. And I have no talent for rhyme at all. SO what is our partridge in a pear tree? What is do-able and will really make a difference to patients inside a year, next year? Can we make it into doggrel (George?)?
Things like
- Completely reworked NIH website
- Doctor education
- Transparency with patients
- FIVE TREATMENT CENTRES (or whatever they're called that the CFSAC have asked for).
Now it may be too late for the Xmas email to get going, but I thought I'd see what you all think about what we can and should remind him about. So silly or sane, what do you think?
OTH