Tuller Blog on Comments from NICE's expert reviewers (via FOI request)

[Goldfishliveson]

Hi Amanda - welcome (back?) to the forums. There were a few places where I'd have made edits to your submission, but it also included a huge amount of useful information. Thanks for all of your work on this.

I don't use this forum much as you can see from my profile , and won't be keeping up with all the notifications on this thread . I've tried to be clearer .

 

[Keela Too]

Iam Amanda Rankin who wrote the document submitted by the patient expert . Seeing as they didn't remove my first name , thought I'd just go public .

Apologies. I see where I went wrong now. So - this isn't a part of a document submitted by a stakeholder then? If I understand it right now, the patient expert asked you for input and you gave in in a written piece that carried your first name?

 

[Goldfishliveson]

Hey can you all join this thunderclap and share it in the forum where people will see it .i don’t know how to use this forum properly . It’s for the tedxbrisrol talk dare to disrupt to share info with them . Please join and share it . https://www.thunderclap.it/projects/64068-tedx-energy-metabolism-me

 

[Goldfishliveson]

Apologies. I see where I went wrong now. So - this isn't a part of a document submitted by a stakeholder then? If I understand it right now, the patient expert asked you for input and you gave in in a written piece that carried your first name?

Yes I gave the patient expert this write up as they were asking for input and I was told about this by some other people that alos submitted info to the patient expert . I asked to be kept anon . My name appears there as it’s the contents of the conversation I have with Rosa to ask her if I could submit her blog to the patient expert , to show her consent to submit it . I am thankful to the patient representative for submitting the info and asking for input , as individuals can comment through stakeholders as far as I am aware