Hi Amanda - welcome (back?) to the forums. There were a few places where I'd have made edits to your submission, but it also included a huge amount of useful information. Thanks for all of your work on this.
I don't use this forum much as you can see from my profile , and won't be keeping up with all the notifications on this thread . I've tried to be clearer .
Apologies. I see where I went wrong now. So - this isn't a part of a document submitted by a stakeholder then? If I understand it right now, the patient expert asked you for input and you gave in in a written piece that carried your first name?
Hey can you all join this thunderclap and share it in the forum where people will see it .i don’t know how to use this forum properly . It’s for the tedxbrisrol talk dare to disrupt to share info with them . Please join and share it . https://www.thunderclap.it/projects/64068-tedx-energy-metabolism-me
Apologies. I see where I went wrong now. So - this isn't a part of a document submitted by a stakeholder then? If I understand it right now, the patient expert asked you for input and you gave in in a written piece that carried your first name?
Yes I gave the patient expert this write up as they were asking for input and I was told about this by some other people that alos submitted info to the patient expert . I asked to be kept anon . My name appears there as it’s the contents of the conversation I have with Rosa to ask her if I could submit her blog to the patient expert , to show her consent to submit it . I am thankful to the patient representative for submitting the info and asking for input , as individuals can comment through stakeholders as far as I am aware