Trudie Chalder to speak at Norwegian Research Seminar

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Perhaps we could somehow put together an sceptics PACE fact pack for the attendees. Putting in copies of things like:

the open letter to the lancet with several dozen signatures
copies of David Tuller's work
copies of James Coyne's work
Dr Goldin's stats critique
an intro to the work on Rituximab

At least then the attendees would get to see the other side - assuming they read it. Obviously cost is an issue as is manpower.

Could we do this and what would be the best way to go about it?
 

BurnA

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That was indeed the prime minister, and I do believe her to have been sincere. The problem is however, that when the government give money to ME, it falls in the wrong hands. Because the hands that recieve, and that is supposed to give it to good research - do not have the sufficent knowledge about ME/CFS, and end up giving it to the psychies..
Didn't a minister also give money directly to fluge and mella ? Seems odd that even in a country which is leading biomedical research that it's still possible to end up with trudie chadler giving a talk on ME.
 

BurnA

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Perhaps we could somehow put together an sceptics PACE fact pack for the attendees. Putting in copies of things like:

the open letter to the lancet with several dozen signatures
copies of David Tuller's work
copies of James Coyne's work
Dr Goldin's stats critique
an intro to the work on Rituximab

At least then the attendees would get to see the other side - assuming they read it. Obviously cost is an issue as is manpower.

Could we do this and what would be the best way to go about it?
Sounds like a good idea although the letter on its own is probably sufficient.

How about placing a copy of the letter on every chair in the room ? Would that be possible ?
 

Marky90

Science breeds knowledge, opinion breeds ignorance
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Perhaps we could somehow put together an sceptics PACE fact pack for the attendees. Putting in copies of things like:

the open letter to the lancet with several dozen signatures
copies of David Tuller's work
copies of James Coyne's work
Dr Goldin's stats critique
an intro to the work on Rituximab

At least then the attendees would get to see the other side - assuming they read it. Obviously cost is an issue as is manpower.

Could we do this and what would be the best way to go about it?
Exactly - i proposed this to the norwegian ME-organization, did not get an answer, but will do it anyway. I think its the right way to go.
 
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Sounds like a good idea although the letter on its own is probably sufficient.

How about placing a copy of the letter on every chair in the room ? Would that be possible ?
Yeah, that would work. You could just give 'em links to the relevant articles maybe? I think they would need to see it in scientists words rather than just ours. After all we're just patients, what do we know?
 

Snowdrop

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Actually, my opinion would be for sending the letter to the Lancet with signatures and either a copy of DT's critique or Dr Goldin's stat critique (esp as it is through the sense about science website) and sending that in a polite email to the minister for health in the Norse gov't
along with our concerns for the upcoming seminar.

Crosspost.
Edited to add:
The reason beings that the people who are going to attend--we can't be sure how open a mind they have. They may know what they're expecting to hear and it fits with their views.

Still it worth the effort--we can't know who might stop to think on it.
But if this can still go on as has been said while real research is going on I think it's at the top that the problem needs fixing.
 

Marky90

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Didn't a minister also give money directly to fluge and mella ? Seems odd that even in a country which is leading biomedical research that it's still possible to end up with trudie chadler giving a talk on ME.
Its because Fluge & Mella dont participate too much in the media, they work on their good research. Wyller. et. al, however, loves to show their faces, and the pace authors have close connections to a lot of psychologists and doctors in norway.

And - the conference, that the "the norwegian center for ME" arrange, is filled with psychologists, which is reflected in the conference program.
 

A.B.

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Actually, my opinion would be for sending the letter to the Lancet with signatures and either a copy of DT's critique or Dr Goldin's stat critique (esp as it is through the sense about science website) and sending that in a polite email to the minister for health in the Norse gov't
along with our concerns for the upcoming seminar.
Make sure to say that patients do not want any money to be spent on psych research or treatment. It should all go towards funding biomedical research and providing assistance to patients.
 

Marky90

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What can we do to help @Marky90? Donations for photocopies? Help compiling info?
It`s not too expensive to do, but as I`m saving for rituximab at the moment, that would be nice ofc. I`m participating in a norwegian group called "ME-forskning", which translates to "ME-research". Maybe they are willing to spend some money, we have a meeting at the eight. It will be done anyway, it`s important.
 

A.B.

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A more formal opposition to PACE would be desirable. Ideally a speaker at the conference that would present the aforementioned material.

If that's not feasible then at least permission to distribute the material to participants must be sought or the organizers might just throw it all in the garbage bin. If the conference is held to promote and defend psych interests in CFS this could easily happen. If it's just held because someone who doesn't know any better mistakens Chalder and colleagues for experts then we have a chance.

PS: it would be really nice to expose the corruption of the PACE trial in the same conference Chalder will try to promote it.
 
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Marky90

Science breeds knowledge, opinion breeds ignorance
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A more formal opposition to PACE would be desirable. Ideally a speaker at the conference that would present the aforementioned material.

If that's not feasible then at least permission to distribute the material to participants must be sought or the organizers might just throw it all in the garbage bin. If the conference is held to promote and defend psych interests in CFS this could easily happen. If it's just held because someone who doesn't know any better mistakens Chalder and colleagues for experts then we have a chance.
I think our national ME-organization will do this, i am in contact with them. Next time i`m in Oslo i will seek a chat with the arrangers, maybe they are willing to do as you propose.
 

SilverbladeTE

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Well folks, it looks like the PACE gravy train is still rolling forward - even in Norway. Trudie Chalder is a speaker at a research seminar on CFS/ME being held on April 18th 2016.

http://www.euro-me.org/news-Q12016-003.htm

Perhaps it's a brilliant twist to demonstrate that the whole thing was just an exercise to prove how not to research anything.....but I doubt it.
Boo her off the damn stage!! (if possible)
Seriously
If that had been done from the start, mass ranks dissing the psych S.O.B.s, we wouldn't be in this position, now.
 

BurnA

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Boo her off the damn stage!! (if possible)
Seriously
If that had been done from the start, mass ranks dissing the psych S.O.B.s, we wouldn't be in this position, now.
Maybe we should have a strategy to protest at any conference where psychologists are presenting on ME/CFS.

Edit : Psychobabblers not psychologists. Thanks @Valentijn
 
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