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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Anyone suffer from this distressing symptom ? Been suggested I see a neurologist and I was wondering if anyone on here has any experience
High calorie food if you can... ice-cream, cream etc added to puddings is a good way to get lots of calories in. Have a few biscuits with each hot drink you have - dunk them if it's easier.. snack through the day. Try to find things that you like that are easy for you to swallow...usually easier food is soft and moist. There are some good drinks available - I don't know where you are - but things like Up'nGo have the equivalent of two weetbix in a small carton, and that can be an easier way to take in nutrition. Plus if you can get complan in the supermarket, that will boost your intake...Barium swallow shows issue lies in initiating the swallow. I find my swallow gets weaker as the day goes on and I've lost weight since this latest episode of dysphagia. Tests are weeks away and I don't know how to manage best in the meantime
I was diagnosed with SFN (through a skin punch biopsy). I have peripheral neuropathy, nerve pain, and dysautonomic symptoms (Dr. Lapp at Hunter-Hopkins center checked for signs of orthostatic intolerance and found that upon promptly standing up from a supine position, my heart rate went up too quickly and my hands started getting visibly darker-skinned; blood pooling I believe).Another dysphagia flare up and no nearer a solution 😢
The classical manifestations of MD are neuromuscular... The bronchial and pharyngeal muscles are especially affected, leading to bouts of bronchial asthma and to pharyngeal spasms and dysphagia - the "lump in the throat" feeling... Ianello et al reported a case in which severe dysphagia to solid food subsided after 4 months of substitution therapy with Mg only.
A 41 year old woman presented with a 4 month history of oropharyngeal spasms precipitated by eating, yawning or talking... Due to the severity of symptoms she was admitted for IV magnesium infusions resulting in a dramatic symptomatic improvement within 24 hours.