Basic information re swallowing difficulty (dysphagia) in ME/CFS from the MEA
Difficulty with swallowing is a 'red flag' symptom that you MUST go and see his doctor about - if you have not already done so because this is NOT a characteristic symptom of ME/CFS
However, it is a problem that can sometimes occur in people with more severe ME/CFS and I am dealing with such a case at the moment. And in the past, I have had patients who have had to be tube fed or have percutaneous endoscopic gastrostomy feeding carried out as a result.
Difficulty with swallowing is also referred to in the MEA purple book (clinical assessment section on page 51) and in the CMO report on ME/CFS (section 18.104.22.168) - information that could be passed to a GP
Whilst it is possible that dysphagia could be due to a gastric motility problem in relation to ME/CFS (if you have a copy of the MEA purple book the link with ME/CFS is summarised and referenced in the clinical assessment section) there are other explanations which do need to be considered and possibly investigated
So this is not a problem which can be diagnosed and properly managed on an internet discussion forum until you have been given a medical explanation as to why it is occurring
As far as management is concerned, this will very much depend on the cause.
If it does turn out to be related to ME/CFS I would suggest that the GP is asked if you could be referred to an NHS dietitian for expert advice on diet and nutrition. We also have a very experienced dietitian - Sue Luscombe - here at the MEA as part of our medical team who could be consulted.
Useful general information on difficulty with swallowing (medical term = dysphagia):
Dr Charles Shepherd
Hon Medical Adviser, MEA