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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I'm doing okay, but I just remembered that the doctor is not doing this at full strength. I don't remember how much he cut it, but I think I might be at 1/4 strength. IOW, going slowly, but taking longer.Andrew, my regular MD doctor has offered me EDTA IV's. I haven't been eager to do it because other things have made me so sick. I'd really like to hear more about how you're doing with this.
I have been at it for a few days longer and the symptoms seem to be getting worse rather than better. I feel as if I am wading through a swimming pool all the time, or else, it's like those dreams where you are running with all your might but hardly moving forward. This is lot like normal CFS of course, except that I am not getting the muscle aches proportionate to the weakness.
I also have spectacularly bad brain fog. Routine and simple tasks are confusing me.
Somehow I keep thinking this is some kind of barrier I am about to break through but I don't know why I think that - wishful thinking perhaps?
Are you just taking B12 or on a full protocol for detoxing the metals?
Also, is there anything in particular that makes you sure it's a detox effect not a bad reaction to something?
Could you tell me where you got your fecal analysis done and was it expensive?
I've just seen Kenny De Meirleir and asked him about detox symptoms (mainly headaches and palpitations and severe muscle weakness for me). He said this happens because my liver has run out of B12. It has been so depleted for so long that it runs out in no time once it gets going on detoxing.
He said the way to get rid of these detox symptoms is not to try to slow down the detox by lowering the dose but to INCREASE it. I am now in jecting 10mg of B12 a day. (Previously 10mg 3 times a week).
The difference is incredible. No headaches, less weakness and my energy/functionality has gone up overnight from about 3 to about 7 (On that 1 to 10 scale, I cannot remember the name of it). As soon as I feel a bit of a headache coming on I stuff two B12 sublingual tablets in my mouth and once the tablets have dissolved over the course of an hour, the headache is gone.
His view of detoxing is that the only "bottleneck" that exists is the quantity of essential nutrients you give to your liver to do the job.