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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Senior Member
This article shows plenty disregard for ME/CFS patients

Excerpt: Whether the NIH-funded ME/CFS research centers working is a pretty darn big question to ask. Six years ago – pre-NIH Center funding – funding for chronic fatigue syndrome (ME/CFS) had just about bottomed out. In 2015, the NIH was spending a miserable $6 million on ME/CFS. Despite years of advocacy, despite promising findings in the research field, despite the million-plus people which studies suggest may have the most functionally disabling disease known, the NIH was actually – adjusted for inflation – spending less, much less – on ME/CFS than it had been twenty years earlier.
Read: https://www.healthrising.org/blog/2021/10/19/mass-nih-funded-chronic-fatigue-research-centers/.

It is time to become political and write or email to Senator Edward Markey.
I did already.

Rufous McKinney

Senior Member
My congresswoman is on the Military Health subcommittee or some such thing.

so you mention Gulf War Syndrome/burn pit victims..- toss it into the mix because its important to link these various issues together, in my opinion.