I agree. My husband went into an infectious disease doctor with his massive EBV levels and she shrugged and said, "I can't help you." I have a friend in Boston who cannot even get anyone to consider CFS as a diagnosis--they run blood tests and shrug and come up with the first explanation they can think of and send her out the door; she can't find a single person to evaluate her. I saw a young doctor after having a terrible POTS relapse and she informed me I couldn't possibly be orthostatic at my age and wouldn't do the basic orthostatic test. A colleague's daughter--who perfectly meets Dr. Bell's pedCFIDS criteria--was told by the Mayo Clinic that CFS was a meaningless diagnosis and thus gave her no diagnosis and sent her on her way, with no help at all, and *I* have to try to explain that THE MAYO CLINIC KNOWS NOTHING ABOUT CFS AND SHE SHOULD LISTEN TO ME without sounding like a deranged moron. The Cleveland Clinic searches for mood disorders in CFS patients. I bet if you polled 100 doctors, maybe one of them would know there was NK cell dysfunction in CFS. My husband has to fly to Nevada, not just to get the best help, but to get any help at all.
What shocks me is the lack of curiosity. The laziness. The shrug, "I can't help you." The firm belief that there is an iron circle around the sphere of their knowledge and nothing outside of it can possibly be significant and there's never any need to look.
I know plenty of doctors who aren't this way, doctors my husband and I have both seen who have gone and done research and talked to colleagues and tried to find out what they could, doctors who took us at our word that we were sick and did everything they could to increase their own sphere of knowledge so they could help us. But there are far too many who don't.