Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My god. It's just....deranged.
Would have been nice to know that "most cases resolve" in three years... 25+ years ago when I got this damned thing. I probably would have been able to auto-suggest myself into a rapid cure, since we know it's all psychological...
Oh, yeah, the confusion between CFS and depression was actually cleared up in a couple of studies. Guess that dog won't hunt.
My god. It's just....deranged.
" Patients being given financial support (to survive) welfare payments delays recovery."
Right, I just love living on my $8400/year disability check, as opposed to the the $35,000/yr I was making in 1988, the last year I was able to work. And those COLA increases of $4-5/mo (zero coming next year) really help me keep up with the rising cost of living. And I just love being denied access to medical care because many doctors don't take Medicare/Medicaid and being denied certain medications and tests because Medicare D doesn't want to pay for them.
Yeah, I'm just lazy. I lost my beautiful Victorian 100 year old house in San Jose CA, so that I could live in government housing, which requires paying 30% of your income for the privilege of living in a horrible environment.
Yeah, I'm just lazy. I became an entrepreneur at age 10 (buying baby chicks for a penny each, raising them, selling them for $1 live or $1.50 butchered), bought a sewing machine with my profits and sewed or bought all my own clothes since then. Made enough money to buy my own first car at 17.
Yeah, I'm just lazy. I worked my way through college and got accepted at 3 law schools.
Yeah, I'm just lazy. Nobody in my family has ever been on public assistance and some of them are so ashamed of me that my mother asked me to go to another town to use food stamps, so the neighbors wouldn't see. So I guess any support from them would have delayed my recovery - which hasn't happened yet, after 28 years of illness. The delay must have been because I got "support" from SSDI after the first 7 years of illness.
None so blind as he who WILL not see.
There has always been the subset who were high functioning, had an acute febrile illness, and never recovered. They give a different pattern than the borderlines or the somatiform illness...
Your article must be some kind of joke, surely? You have not read the paper. You have not read the paper? You write a lengthy piece rubbishing a paper published in “Science” and you haven’t read it? And the name of this website is….?
And you make some inference with regard to the fact that the study wouldn’t have taken place without financial assistance from the mother of a woman who has been ill for many years. Are you suggesting this woman would be glad to have fake results of some kind in order to “help” her daughter? Are you somehow inferring that Judy Mikovits – 20 years’ experience of HIV – and Robert Silverman – even longer experience in cancer research – have somehow manufactured data and fooled that slipshod, second-rate journal “Science”? . . .
It’s a cosmic joke isn’t it? These poor patients – the ones with a well-defined chronic disease and not the depressives given a “CFS” tag by lazy or incompetent physicians – sit in a consulting room with people brimming with the type of attitiude you display. Which one is deluded?
I suggest you rename your site “ArchaicBeliefsSpoutedWithoutReadingNewEvidenceBasedMedicine”.
"La belle indifference"? For them, it's a sign of conversion disorder (the modern day term for hysteria).