The Solve ME/CFS Initiiative Conference is about to start in a few minutes

Countrygirl

Senior Member
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5,671
Location
UK
https://solvecfs.org/empower-m-e-livestream/

This is about to start in a few minutes:

Thank you for registering to watch Solve ME/CFS Initiative’s EmPOWER M.E. Roundtable




Solve ME/CFS Initiative (SMCI) is hosting our first ever EmPOWER M.E. Roundtable on April 2, 2019 moderated by Board Certified Patient Advocate, Sharon Stevenson, DVM PhD.​

We are so pleased to bring you this exclusive event by Live webcast!

You can watch live on:
Tuesday April 2
9:15am - 12:30pm ET

 

Countrygirl

Senior Member
Messages
5,671
Location
UK
The EmPOWER M.E. Roundtable will feature two workshop-style panels:

Session 1: “Empowerment in the Doctor’s Office: Overcoming White Coat Syndrome”
Exercises and ideas for empowering your experience in the medical environment


Dr. Nancy Klimas: ME/CFS clinician and researcher, Director of the Institute for Neuro Immune Medicine, Nova Southeastern University, Nova Southeastern University
Dr. Camille Birch: Ramsay Award Research Awardee and person with ME, Genome Analyst, HudsonAlpha Institute for Biotechnology
Eric Braun, PhD: caregiver, partner, and ME Advocate


Session 2 – “Advocacy: Your Story, Your Impact”
How telling your story can empower you and make change by combining advocacy and self-representation


Secretary Rona Kramer: Secretary Maryland Department of Aging, Former State Senator, family member of person with ME
Emily Taylor M.A.: Director of Advocacy, Solve ME/CFS Initiative, and caregiver

Join us online - register here to watch live:

http://go.solvecfs.org/e/192652/for...h=bfCcHcL96iNngdMhdeVcaf4zd-hPT95trN7MyZkQBJY
 

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
@Countrygirl are you able to watch it? I can see the screen but there is nothing happening. They are now 1 hour and 15 minutes late for the first roundtable starting 9:15 EST. I can't reach anyone at the organization either. I wonder if the livestreaming isn't working???
 

Carl

Senior Member
Messages
484
Location
United Kingdom
I cannot find any link and I have received no email after registering. The video on the page following registration just shows a general video about how it affects people.
 

Rooney

Senior Member
Messages
191
Location
SE USA
Hate that I missed the Klimas talk. Anyone have key points the medical presentation of advocacy was about?
 
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