The MEGA project: poll on what you consider acceptable--version 1, closed for further comment

What variation of MEGA is acceptable to you?

  • I don't care/I have no opinion.

    Votes: 0 0.0%
  • MEGA is fine as is.

    Votes: 1 3.6%
  • MEGA should not preceed in any form.

    Votes: 2 7.1%
  • White and Crawley out AND definite ME selection criteria AND many severe samples.

    Votes: 8 28.6%
  • Definite ME selection criteria AND many severe samples.

    Votes: 1 3.6%
  • Definite ME selection criteria only.

    Votes: 1 3.6%
  • Many severe samples only.

    Votes: 0 0.0%
  • White and Crawley out only.

    Votes: 0 0.0%
  • White and Crawley out AND definite ME selection criteria.

    Votes: 2 7.1%
  • White and Crawley out AND many severe samples.

    Votes: 0 0.0%
  • My preferred option isn't shown.

    Votes: 2 7.1%
  • White/Crawley out, ME selection criteria, many severe samples, patient representation.

    Votes: 7 25.0%
  • White/Crawley out AND patient representation.

    Votes: 2 7.1%
  • White/Crawley out, ME selection criteria, patient representation.

    Votes: 1 3.6%
  • White/Crawley out, many severe samples, patient representation.

    Votes: 1 3.6%
  • ME selection criteria, many severe samples, patient representation.

    Votes: 0 0.0%
  • ME selection critera, patient representation.

    Votes: 0 0.0%
  • Many severe samples, patient representation.

    Votes: 0 0.0%

  • Total voters
    28
Status
Not open for further replies.
Messages
30
PACE spent 8,000 pounds per person (641 people) and was low tech/no tech.
How on earth could MEGA study 12,000 samples?
Peter White has been talking about a study like this for years- looking at biomarkers for stress, fatigue, depression, anxiety.
MEGA does not look like a study on ME/CFS at all.
Studies of ME/CFS actually need to look at ME/CFS symptoms - and should not focus on comorbid mental health issues as MEGA does.
Unless every person meets the CCC plus PEM or ICC its a total waste of money and may be harmful.
Money needs to be targeted to where it has a good chance of finding pathophysiology and biomarkers.
The knowledge of ME/CFS is far too limited at this stage to do a broad study.
Each phenotype once identified by biomarkers can be removed from the general ME/CFS pool..
 
Status
Not open for further replies.
Back