Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Le Parisien! Just posted a comment and it's in moderation.
Jump in, francophones (or people willing to use Google Translate!).
There are a lot of articles listed here.
We want to highlight the best ones -- get them to the top of the search ratings. That means searching the titles and clicking on the found link (as @oceiv) said above. OTOH, we don't really want to give a lot of traffic to the bad ones.
Are people who read these articles willing to give a quick rating (A-F?) so the rest of us know whether to give a particular article a boost or not?
While we need to correct misinformation in bad articles, we have to be careful about giving more attention to bad behavior than to good. Any attention is good attention in some media books and we don't want to encourage those who write garbage.
I see a two-pronged goal here:
1) we want to encourage sound, scientific, sympathetic writers to keep writing on the topic... and their editors to want to publish such articles, and
2) we want people who search to learn more about SEID to find the most accurate and informative articles.
How best to accomplish these goals?
I've only read the New Yorker article. It's a good one, for the good list:
If we're giving them scores, i think I'd give it an A (but I'd need to re-read to be sure)
I'll admit, I haven't had time to read anything! I've been all action, no reflection!
Can anybody list at least some of the good articles?
Someone who knows more about these things can hopefully give better information than I can at how to utilize this resource, but I think we need to make a concerted effort to use search engines to find the best articles (even though we know they're there) and click on the result to get search engines to give more priority/value to those articles. Am I right? Anyone here up to speed on how search engines work?
Something that search engines like and seem to respond to quickly is 'being social' - so it is always good to share the good articles on Facebook, Twitter, Google Plus, retweet and repost, even click 'Like' or favourite a tweet when someone else shares the good articles on social media.