...cont
"Not surprising given the serious problems highlighted in
the House of Commons Select Committee on Science and
Technology ( HC 132) , which lambasted the MRC for wasting
funds and misguided strategies for research. (Hooper 2010).
Also not surprising given the MRCs total failure to engage
with the vast body of significant biomedical evidence about
the nature of ME/CFS contained in more that 4,000 published,
peer-reviewed research papers, the misleading and
contradictory content of the FINE/PACE Trial manuals
demonstrating the apparent coercion, and exploitation of
patients and the seriously flawed and inadequate science
that underpins the Trials as outlined in detail in Professor
Hooper's 442 page report Magical Medicine .(Hooper 2010)
The failed FINE trial announcement brings into shocking
clarity the dreadful misrepresentation of ME as a mental
heaklh disorder. The FINE trial has so clearly failed to
achieve anything except waste valuable time and precious
funding .
It is now time that the psychosocial model be discredited,
that the psychiatric involvement and interpretation of ME be
rejected and a new era of genuine scientific research into
the biomedical causes underpinning this desolatating
neurological disease be given centre stage ?
Surely now the current practices of the ME clinics around
the UK will be overhauled and CBT and GET finally removed
to the annals of history , no longer to damage deny and
negate the truly dreadful physical suffering of tens of
thousands of ME patients throughout the UK.
This is medical neglect at its worse; it is time to stop."
References
Burchfield A (2009) From Alice Birchfield
http://www.investinme.org/Article-015A FINE Trials-
Alice.htm
Hooper M (2010) LETTER to Dr Morven Roberts, Clinical Trials
Manager, UK MEDICAL RESEARCH
COUNCIL
http://www.investinme.org/Article400 Magical Med
icine%20Letter%20to%20Roberts%20MRC.htm
Hooper M Williams M(2010) Magical Medicine : How to Make a
disease
disappear
http://www.investinme.org/Article400 Magical M
edicine.htm
Kinlon T(2009) Why is the 11-item bimodal Chalder Fatigue
Scale being used as a primary outcome measure?
http : //www.biomedcentral.com/1741-7015/4/9/comments#298590
Kinlon T (2009) Further comments on the outcome measures
being used and suggestions for other outcome measures that
could be useful in such trials
http://www.biomedcentral.com/1741-7015/4/9/comments#298590
ME Research (2004) Severely Overlooked by
Science
http://www.meresearch.org.uk/information/publication
s/severe1.html
Williams M (2009) Can the MRC PACE Trial be justified?
www.meactionuk.org.uk/Can-the-MRC-PACE-Trial-be-
justified.htm
-
Greg Crowhurst
www.stonebird.co.uk
(The Lived Experience of Severe ME)
(well said Greg!)