From Kurt:
They refuse to accept the concepts of physical systems biology, for e.g. that there can be common physical mechanism(s) that can have wide-ranging pathological effects if impacted by a single or by several physical causes.
But I think another problem is their adherence to the old stigma about "chronic fatigue" relating to 'malingering' and hypochondria. They take very seriously other established neurological/ genetic disorders with wide spectrums of symptoms and even aetiology, but somehow are unwilling to do the same about ME/CFS.
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This is so true, just look at MS. Some people can live their lives relatively unaffected. Others can have speech issues only. The next person may be confined to a wheelechair unable to move their legs. Another may have no problems with their legs but be unable to use thier arms - and of course they are also cursed with overwelming "fatique".
This is all dependent on the positioning of the scelrosis (scars) in the CNS. Hence the name Multiple Scelrosis!! MS is an auto immune disease. Why is ME/CFS such a difficult biological concept for the medical profession to grasp as if it has no precedent.
Of course, it does have a historical precedent in the sense that MS sufferers were maligned and derided for being malingerers. This stopped over a hundred years ago with simple biological progress with understanding taken mainly from autopsy. Why would this be hard to do in ME. Let alone all the proven bio markers!!
I'll tell you why. Insurance companies and "evidence based medicine". Most people don't realise that even people with MS are having their diagnosis withheld by doctors afraid of goverment and insurance companies. If the "computer says no" then it doesn't matter about all your signs, symptoms other biological tests. One" Normal" MRI "the diagnosis "GOLD STANDARD" and you are "medically unexplained" regardless of all signs, symptoms, other medical tests. This is all in a long accepted, understood illness. What they dont tell you is MRI often miss the scars in MS and the machines they are using are low magnet field namely 1.5t. New 3T machine are upto 30% more able to pick up CNS damage. The next generation machines go up to 7T.
The insurance industry has got it all sewn up with this "evidence based" medicine. The doctors are either ignorant, negligent, running scared, or moonlighting for insurance companies.
Furthur more how many of us initially went to the doc complaining of "stress" or "depression". How can such issues be DIAGNOSED UPON YOU if you are not even complaining of the symptoms of such SUBJECTIVE illnesses. We live, we love, we laugh, we cry, we feel happy, we feel sad, we over work, we sometimes laze about. THIS IS THE HUMAN CONDITION!
Since when were such experiences "Illnessess". A psche forcing this diagnosis on you is like a doc telling you you are in pain when you are not.
Then to go on and say that the human experience is the cause of you physical illness with no objective markers of such and a patient not complaing of those symptoms is beyond contempt!!
What would the psyche lobby want to do? Perhaps remove all human experience to protect us against their subjective illnesses. Yes, obviously!! Their answer is psychtropic medicines which if we resist we are "Malingerers".
All done under control of the state.
"AND, I SAY TO MYSELF...WHAT A WONDERFUL WORLD"!