ChrisD
Senior Member
- Messages
- 475
- Location
- East Sussex
This time last week I took a bit of a leap and had Intravenous Oxygen privately on the basis that I had responded well to Hyperbaric. The result was very different though, despite it being a very low dose.
At first it is a nice feeling as if taking a breath of fresh air at the top of a mountain, but later that day it switched more to chest tightness, a heavy feeling, shallow breathing and mild hyperventilation despite being totally calm. This was improving until a couple of times where I have tried to do my usual short walk and then these symptoms return in correlation with my PEM/Payback and are quite uncomfortable and scary.
Yesterday a GP checked my blood pressure, oxygen saturation, and heart via stethoscope and said it was all normal. My heart rate monitor is normal too but something has definitely shifted since the invasive treatment.
The symptoms are worst when I am reclined, lying down and trying to get to sleep at night even on my side and my whole body becomes tense and my breathing is not okay. I don’t feel it is really psychological at all because I feel calm in my mind and have wound down with meditation and warm tea.
I have a few theories;
1. The added oxygen has upset the respiratory balance and confused the brain into a different pattern of breathing.
2. The purpose of the treatment is to create an anti-inflammatory effect but perhaps with misfiring immune system this is effecting And irritating lung tissue.
3. It has effected the infections that I have including Lyme, Coxsackie etc and caused die-off or a proliferation of bacteria such as Babesia.
4. The oxygen itself has caused damage or irritation to tissues.
5. It does also feel like an autonomic issue similar to how I have hand hypnic jerking before when I try to go to bed.
It does also fit this description but without the pain: Sitting up and leaning forward tends to ease the pain, while lying down and breathing deep worsens it. Some people describe the pain as a dull acheor pressure in their chest. ... Chronic pericarditis often causes tiredness, coughing and shortness of breath. In this type of pericarditis, chest pain is usually absent.
It’s just really frustrating when you try something that in theory should make you better but makes you worse anencephaly exacerbates symptoms. If it persists my next step would be to get a chest X-ray or I am wondering about further respiratory diagnostics a GP doctor could easily run.
Any other ideas?
At first it is a nice feeling as if taking a breath of fresh air at the top of a mountain, but later that day it switched more to chest tightness, a heavy feeling, shallow breathing and mild hyperventilation despite being totally calm. This was improving until a couple of times where I have tried to do my usual short walk and then these symptoms return in correlation with my PEM/Payback and are quite uncomfortable and scary.
Yesterday a GP checked my blood pressure, oxygen saturation, and heart via stethoscope and said it was all normal. My heart rate monitor is normal too but something has definitely shifted since the invasive treatment.
The symptoms are worst when I am reclined, lying down and trying to get to sleep at night even on my side and my whole body becomes tense and my breathing is not okay. I don’t feel it is really psychological at all because I feel calm in my mind and have wound down with meditation and warm tea.
I have a few theories;
1. The added oxygen has upset the respiratory balance and confused the brain into a different pattern of breathing.
2. The purpose of the treatment is to create an anti-inflammatory effect but perhaps with misfiring immune system this is effecting And irritating lung tissue.
3. It has effected the infections that I have including Lyme, Coxsackie etc and caused die-off or a proliferation of bacteria such as Babesia.
4. The oxygen itself has caused damage or irritation to tissues.
5. It does also feel like an autonomic issue similar to how I have hand hypnic jerking before when I try to go to bed.
It does also fit this description but without the pain: Sitting up and leaning forward tends to ease the pain, while lying down and breathing deep worsens it. Some people describe the pain as a dull acheor pressure in their chest. ... Chronic pericarditis often causes tiredness, coughing and shortness of breath. In this type of pericarditis, chest pain is usually absent.
It’s just really frustrating when you try something that in theory should make you better but makes you worse anencephaly exacerbates symptoms. If it persists my next step would be to get a chest X-ray or I am wondering about further respiratory diagnostics a GP doctor could easily run.
Any other ideas?
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