I developed ME after Hepatitis B vaccines. I was diagnosed with ME by a doctor at a clinic specialising in ME.
Following the ME diagnosis I had a muscle biopsy last year, which confirmed Macrophagic Myofasciitis (MMF). This is caused by aluminium hydroxide in the vaccine. Research in France has concluded that patients with MMF develop ME. So I'm 100% sure in my diagnosis.
My understanding from research papers is that some people with MMF develop autoimmunity, but not all. MMF results in a constant activation of the immune system due to the persistence of the vaccine adjuvant, and I think this leads to the ME and resulting symptoms in patients with MMF.
My symptoms are chronic fatigue, muscle pain & weakness, cognitive impairment. My symptoms worsen with physical and mental exertion (PEM), with a delayed worsening.
I have to rest for about 20-22 hours a day to minimise pain and fatigue. Simple tasks can hit me hard later. I use a wheelchair frequently when out of the house.
Really sorry that you have had this experience. We do appreciate your sharing information so that we can all learn.
It's striking that we all have different histories, yet end up with a ME diagnosis. The result is similar, the causes are different, but possibly have similarities, or at least commonality of immune system factors.
Personally, my ME is characterised as you describe EXCEPT I get no muscle pain (some weakness and nerve symptoms but not severe), and no cognitive impairment.
The relevance to this thread could be that you and I might have different conditions (different causes, some common, but some different symptoms), therefore the fact that Tenofovir didn't stop you developing 'ME', could be a red herring in terms of it's efficacy in treating (some) 'ME'.
Complicated this innit?