judyinthesky
Senior Member
- Messages
- 361
I am not sure where to post this, but I have had my Pf 1 vaccination 13 days ago. I was a mild CFS case with pancreatic insufficiency and quite a high activity level.
I am going into hospital to exclude other things but as I do not expect much proper treatment to come out of it, I am looking for advice for the following issues.
In general, the vac super-heightened my nervous system in a way I have never experienced it before. I have experienced it in a similar but different manner 2 years ago when I got sick after a Virus in Vietnam.
This is so much that it disables me from eating, as eating causes my nervous system to tighten up and I have to take Xanax to be able to eat and to not get a pseudo panic attack (I say pseudo because I only fear intense inconvenience up to the point of the feeling like one is dying, but no fear. It usually starts with more sweaty hands (I sweat constantly anyways), then goes up into my head and might lead to nerve twitching, and heat. And I always sweat, 24/7.
When I eat, this happens autonomically in my body as well. I eat small proportions and liquid as much as I can, but I am still always on the verge in that state.
Apart from using Xanax, which makes it easier but does not take it away, I have not found any solution.
I also have an extremely heightened nervous system in my gut in general, and am always sweaty or shivering.
My level of functioning also decreased greatly to a never known level of fatigue. I used to walk for hours and now feel the heightened nervous system from doing a few steps. I wonder whether this is how people with light or sound sensitivity crash? I have never experienced this level of "physical" attacks before.
I am looking for any possible solutions or ideas. It is likely that this vaccine reaction will take a long time from what I can take from those who crashed so badly before, but I need to get out of this emergency state. I cannot pace much more as it would stop eating.
I really feel at a loss, the v created the feeling like my nervous system is constantly on fire and on the edge everywhere in the body, and I feel the brain inflammation, if this is what it is.
I am grateful about any advice on potential medication, or directions to go with my doctors.
I have just a little sound and light sensitivity, seems like the sensitivity is in my garstro system and reacts to any "exception"/movement.
I do not want to scare anyone with that experience, sorry if I have. Just really looking for any advice to get out of this hypersensitive mode. It is very exhausting and a mental and physical downward spiral it seems to me atm.
I am going into hospital to exclude other things but as I do not expect much proper treatment to come out of it, I am looking for advice for the following issues.
In general, the vac super-heightened my nervous system in a way I have never experienced it before. I have experienced it in a similar but different manner 2 years ago when I got sick after a Virus in Vietnam.
This is so much that it disables me from eating, as eating causes my nervous system to tighten up and I have to take Xanax to be able to eat and to not get a pseudo panic attack (I say pseudo because I only fear intense inconvenience up to the point of the feeling like one is dying, but no fear. It usually starts with more sweaty hands (I sweat constantly anyways), then goes up into my head and might lead to nerve twitching, and heat. And I always sweat, 24/7.
When I eat, this happens autonomically in my body as well. I eat small proportions and liquid as much as I can, but I am still always on the verge in that state.
Apart from using Xanax, which makes it easier but does not take it away, I have not found any solution.
I also have an extremely heightened nervous system in my gut in general, and am always sweaty or shivering.
My level of functioning also decreased greatly to a never known level of fatigue. I used to walk for hours and now feel the heightened nervous system from doing a few steps. I wonder whether this is how people with light or sound sensitivity crash? I have never experienced this level of "physical" attacks before.
I am looking for any possible solutions or ideas. It is likely that this vaccine reaction will take a long time from what I can take from those who crashed so badly before, but I need to get out of this emergency state. I cannot pace much more as it would stop eating.
I really feel at a loss, the v created the feeling like my nervous system is constantly on fire and on the edge everywhere in the body, and I feel the brain inflammation, if this is what it is.
I am grateful about any advice on potential medication, or directions to go with my doctors.
I have just a little sound and light sensitivity, seems like the sensitivity is in my garstro system and reacts to any "exception"/movement.
I do not want to scare anyone with that experience, sorry if I have. Just really looking for any advice to get out of this hypersensitive mode. It is very exhausting and a mental and physical downward spiral it seems to me atm.
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