Stanford: Scientist identify the underlying cause of rheumatoid arthritis

[Gingergrrl]

I have to admit, I am still not being used to share my thoughts and illness(es) on the forum, but I am very happy that I received such a kind welcome here so far

It's great to see you posting and you have a lot to contribute

 

[LiLaLu]

I brought him some rapamune research, including ones showing people with HIV taking it, and he prescribed it off-label for ME

@ScottTriGuy
That is awesome. I have encountered some medical professionals, that are really offended if you suggest treatments or bring research... I am glad, you have found someone, who works with you in an open-minded and even experimental way.

I have done a bit of research over the weekend into mTOR and sirolismus (rapamune) because it seems to have besides its immunosuppressive and (at least in animals some) longevity promoting effects also a mast cell inhibiting effects, which is pretty interesting because I am suffering from quite severe MCAS. Although I think it would be difficult to get a doctor to prescribe it for me...

It also seems to have an effect (on mast cells) via different ion channels, mostly kalium channels.
@Inara - I hope it is okay, that I tag you here, but I thought it might be interesting for you, too.

https://publikationen.uni-tuebingen.de/xmlui/handle/10900/49719?show=full

It's great to see you posting and you have a lot to contribute

@Gingergrrl Thank you - that is very kind.

 

[ScottTriGuy]

Although I think it would be difficult to get a doctor to prescribe it for me...

Not sure where you're located, but I also bought some when I went to Mexico (through a friend that works in the industry there) at a cheaper price than I have to pay at home.