That is awesome. I have encountered some medical professionals, that are really offended if you suggest treatments or bring research... I am glad, you have found someone, who works with you in an open-minded and even experimental way.
I have done a bit of research over the weekend into mTOR and sirolismus (rapamune) because it seems to have besides its immunosuppressive and (at least in animals some) longevity promoting effects also a mast cell inhibiting effects, which is pretty interesting because I am suffering from quite severe MCAS. Although I think it would be difficult to get a doctor to prescribe it for me...
It also seems to have an effect (on mast cells) via different ion channels, mostly kalium channels. @Inara - I hope it is okay, that I tag you here, but I thought it might be interesting for you, too.