RL_sparky
Senior Member
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I don't believe this has been posted yet.
Stanford 2016 ME/CFS Newsletter
Excerpt:
Future Research and Endeavors:
ME/CFS Brain and Tissue Bank:
It is with some hesitation that we publically announce our decision to begin the regulatory process to accept brain donations from deceased ME/CFS patients. We plan to establish a robust tissue and brain bank to help us better understand the nature of ME/CFS. More information on this is forthcoming.
Homebound/Bedbound ME/CFS Patient Study:
The Stanford ME/CFS Initiative is committed to improving the lives of all patients with ME/CFS, including those that are home- and bedbound. It is imperative that we conduct studies that seek to address the challenges faced by these severely ill patients and learn more about their treatment needs. Within the next year we will commence, enrolling homebound patients for a formal study.
Universal Pathogen Discovery:
Building upon preliminary data we collected from our GEISD-Pathogen Discovery study, we are planning to launch a comprehensive pathogen discovery research. In collaboration with Stephen Quake, DPhil, we will take samples of blood, cerebrospinal fluid, lymph nodes, bone marrow, and NK cell compartments.
With our partnership with Linda Nguyen, MD, gastroenterologist and motility expert at Stanford, we will collect gastrointestinal biopsies. This study will be the first comprehensive effort to search for pathogens in sites never attempted before.
Stanford 2016 ME/CFS Newsletter
Excerpt:
Future Research and Endeavors:
ME/CFS Brain and Tissue Bank:
It is with some hesitation that we publically announce our decision to begin the regulatory process to accept brain donations from deceased ME/CFS patients. We plan to establish a robust tissue and brain bank to help us better understand the nature of ME/CFS. More information on this is forthcoming.
Homebound/Bedbound ME/CFS Patient Study:
The Stanford ME/CFS Initiative is committed to improving the lives of all patients with ME/CFS, including those that are home- and bedbound. It is imperative that we conduct studies that seek to address the challenges faced by these severely ill patients and learn more about their treatment needs. Within the next year we will commence, enrolling homebound patients for a formal study.
Universal Pathogen Discovery:
Building upon preliminary data we collected from our GEISD-Pathogen Discovery study, we are planning to launch a comprehensive pathogen discovery research. In collaboration with Stephen Quake, DPhil, we will take samples of blood, cerebrospinal fluid, lymph nodes, bone marrow, and NK cell compartments.
With our partnership with Linda Nguyen, MD, gastroenterologist and motility expert at Stanford, we will collect gastrointestinal biopsies. This study will be the first comprehensive effort to search for pathogens in sites never attempted before.
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