THE FIRST FOUR POSTS IN THIS THREAD WERE OFF-TOPIC AND MOVED HERE FROM THE THREAD Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With ME/CFS
Good Morning....@Pyrrhus, thanks for always pulling an answer for problems out of your hat; and @Wishful, as you can see, I share your insomnia problems. (& have since pre-diagnosis of about 35 years ago). No, nothing works although my ever diligent neurologist is trying me on something new tomorrow. Sorry, I don't have the name as my husband thinks it's one name and I, of course, another. So we'll be surprised!
What causes the sleep problems in not just ME, but in so many neurological conditions? I used to sleep well when a child, an adolescent and a young woman. It wasn't until my first daughter was born when I was 25, that everything more or less changed. I think any mother would tell you the same thing happens to her....except that in my case, it just continued getting worse over the years. It became an out of control spiral not unlike Alice falling down the rabbit hole. Everything was tried on me, and nothing helped.
I had a pretty good thing going whereby I would read until approx. 2-3:00 a.m., sleep for 4 hours and that would be it for the day. Since April, I don't/can't sleep. I'll be really lucky if I get 2 hours/day. The "child" thing leads me to believe that a large part of it is perhaps hormonal or even more likely, damage to the sleep center of the brain from the contractions and pushing of childbirth. (Unknown hydrocephalus?) Whatever, nothing has changed in all those years. I did have a couple of neurological conditions and later had brain surgery.
While it helped many things, my sleep was even worse than ever. I'll say that the short-acting anesthetics seem to make it worse each time I have surgery. The same, as would be expected, with steroids. However, they're often medically needed, so do listen to your doctor concerning that particular problem. No, the usual sleep drops do absolutely nothing for me after the first day or two.
I'll try this one new medication b/c it works in a different way on the brain. If it doesn't do the job, then that's it again. I expect now to be awake for part of the night, thus I don't get frustrated the way I used to. I know I'm not the only one on this forum who suffers in this way. Sleep is natural to us but the lack of it is simply one more thing that we lack. I'm in marvel of people (I watch my husband) who can fall off to sleep simply by closing their eyes. It's a wonderful gift and if you have it treasure it....always. Yours, Lenora.
Good Morning....@Pyrrhus, thanks for always pulling an answer for problems out of your hat; and @Wishful, as you can see, I share your insomnia problems. (& have since pre-diagnosis of about 35 years ago). No, nothing works although my ever diligent neurologist is trying me on something new tomorrow. Sorry, I don't have the name as my husband thinks it's one name and I, of course, another. So we'll be surprised!
What causes the sleep problems in not just ME, but in so many neurological conditions? I used to sleep well when a child, an adolescent and a young woman. It wasn't until my first daughter was born when I was 25, that everything more or less changed. I think any mother would tell you the same thing happens to her....except that in my case, it just continued getting worse over the years. It became an out of control spiral not unlike Alice falling down the rabbit hole. Everything was tried on me, and nothing helped.
I had a pretty good thing going whereby I would read until approx. 2-3:00 a.m., sleep for 4 hours and that would be it for the day. Since April, I don't/can't sleep. I'll be really lucky if I get 2 hours/day. The "child" thing leads me to believe that a large part of it is perhaps hormonal or even more likely, damage to the sleep center of the brain from the contractions and pushing of childbirth. (Unknown hydrocephalus?) Whatever, nothing has changed in all those years. I did have a couple of neurological conditions and later had brain surgery.
While it helped many things, my sleep was even worse than ever. I'll say that the short-acting anesthetics seem to make it worse each time I have surgery. The same, as would be expected, with steroids. However, they're often medically needed, so do listen to your doctor concerning that particular problem. No, the usual sleep drops do absolutely nothing for me after the first day or two.
I'll try this one new medication b/c it works in a different way on the brain. If it doesn't do the job, then that's it again. I expect now to be awake for part of the night, thus I don't get frustrated the way I used to. I know I'm not the only one on this forum who suffers in this way. Sleep is natural to us but the lack of it is simply one more thing that we lack. I'm in marvel of people (I watch my husband) who can fall off to sleep simply by closing their eyes. It's a wonderful gift and if you have it treasure it....always. Yours, Lenora.
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