CFS_for_19_years
Hoarder of biscuits
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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As I understand it, the knighthood was for his work in getting pscyh treatment for PTSD for combat veterans. (Though my thought is they probably need medical treatment as well.) Still, nothing to do with ME unless some of those veterans were incompletely diagnosed. As I understand it, GWI for example, is quite similar to ME. And there's nothing that says you can't have both GWI and PTSD.I wanted to highlight his knighthood obtained for his work with patients with me/cfs (call it what you want)
PR is for the most part open to the internet, and rates very highly on Google search engine. Anything said here, is easily available to KCL and QMUL. As well as to NIH.I doubt if Simon actually heard this, as I believe it was only posted here on PR
PR is for the most part open to the internet, and rates very highly on Google search engine. Anything said here, is easily available to KCL and QMUL. As well as to NIH.
Given that more patients from the APT and SMC arms than the CBT and GET arms took up the offer of post-trial CBT and GET, then they can hardly argue we biased the 2.5 year outcome against CBT and GET.It should be said that he went on to tweet that opposition to the trial would have had more of an effect than the newsletter.
You have to return to the basics of the trial, what population were they studying? Patients who had fatigue for 6months or more. They thought they compared apples with apples, but in fact they had a fruit salad. A decade after the trial, they still think they are comparing apples and they keep returning to their fruit salad cohort pretending they deal with apples.Given that more patients from the APT and SMC arms than the CBT and GET arms took up the offer of post-trial CBT and GET, then they can hardly argue we biased the 2.5 year outcome against CBT and GET.
They seem to want to argue two contradictory claims: that we biased the 2.5 year outcome against CBT and GET, and that the better results for the APT and SMC arms may have resulted from those patients taking up the post-trial CBT and GET offer.
Both can't be true.
Damn right. Like to see them deal with the shit we have to.If you can't stand the heat, then get the hell out of the kitchen.
Watch what you say. If these folks are deathly afraid of people with the physical function of 75-80yos, imagine their state of mind when confronted with a healthy 67yo. They might send the coppers after your mum.My 67 year old mother would like 5 minutes alone in a room with Wessely.
She has a bit of a temper.
ROTFLOL!
If everyone piles in then it will just be a wall of noise, and he'll simply stop interacting. Nothing will be gained. Just my opinion of course.
My bold.ROTFLOL!
OMG, he's already gotten to the "I don't remember saying that. I have to go now" stage! Asked the tough questions, he cuts and runs.
MEmilitant @MEMilitant1
@WesselyS @julierehmeyer @TheLancetPsych @guardianopinion You wrote critically of CBT for 'accepting' vs your 'overcoming disability' in 95.
Simon Wessely– @WesselyS
@MEMilitant1 @julierehmeyer I can't remember what I said yesterday let alone 20 years ago. Anyway, have to do a clinic now. Take care.
It's getting more and more clear how much the guy is all artificial -- everything is an act. He puts on whatever persona he thinks will get him the most benefit in the particular situation.He's gone into affable absent-minded professor mode, whilst continuing to frantically plot and scheme behind the scenes.
Shocking he can say he cant remember what he said yesterday yet has so much influence. Is this him admitting he is making it up as he goes along
When all else fails, go for the amnesia defence.